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(PAST SHOWS- Text Only Page)
December 21 – Jari Holland Buck – Organizational Consultant, Performance Coach, Advocate, Speaker and Author, Hospital Stay Handbook: A Guide to Becoming a Patient Advocate for Your Loved Ones Listen
November 13 – Jay Cohen – Owner and Operator, Disabled Online Listen
November 5 – Ronan Tynan – Irish Tenor -- new CD “My Gift of Christmas Song” Listen
November 1 – Jenny McCarthy – Actress, Comedian,Model, Mother and Author, “Louder than Words: A Mother’s Journey in Healing Autism Listen
October 31 – Chuck Root – Disability Mentoring Day Listen
October 10 – Henry Holden – Actor, Comedian, Athlete, Activist Listen
October 9 – Howard Renensland – Father, Advocate, Actor and CEO & Founder, [with]tv Listen
September 27 – Suzanne Wright, Co-Founder and Alison Tepper Singer, Vice President – Autism Speaks Listen
September 24 – Diana Henry – MS, OTR/L, Founder/President of Henry Occupational Therapy Services, Inc. Listen
September 24 – Molly Lou Conrad – Parent and Advocate – The struggles adults with ASD often face living an “independent” life! Listen
September 22 – Pat Gesualdo – DAD (Drums and Disabilities), Founder/President Listen
September 6 – Dr. Brenda Smith Myles and Shawn A. Henry – Authors, The Comprehensive Autism Planning System (CAPS) for Individuals with Asperger Syndrome, Autism, and Related Disabilities: Integrating Best Practices Throughout the Student’s Day Listen
August 28 – Rosemarie Rossetti – Ph.D., Speaker, Trainer, Consultant, Writer and President, Universal Design Living Laboratory - National Demonstration Home Listen
August 13 – Jane Hersey – Director, The Feingold Association Listen
August 9 – Ilya and Riva Tseglin – Parents of son with Asperger Syndrome in Poway, California taken from them Listen
August 5 – Lucas Osmond, President/CEO, Global Internet Media Productions (GIMP) and Rachael Carbaugh, Office Manager/ Director of Promotions, Gimp Radio Listen
August 5 – Blaine A. Stanziana – Author “It’s All in Your Head” Listen
July 18 – Dan Windheim – Advocate, Poet, Author, "It’s Not All Black and White" A Survivors View of Life (co-authored with his mother, Marjorie Windheim) Listen
July 5 – William Stillman – Autism Spectrum Self Advocate, Author and Consultant Listen
July 4 – Roger Troy Wilson – "Author Let’s Do Lunch." Listen
June 11 – Bill Yuhnke – President, Liberty and Yellow Cab Companies Listen
May 28 – Tricia Riccardi – Founder/President The Dream Society and Vicki Miranti, Board Member Listen
May 25 – Gordon Kirkland – Humorist, Author, Syndicated Columnist and Entertainer Listen
May 24 – Nicki Fischer – Publisher & Editor, The Autism Perspective and Founder, Vibration Regulation Training (VRT) Listen
April 27 – Ed Bell – Advocate, Speaker and ‘2006 Indiana Farm Family of the Year’ - Bell’s Strawberry Farm - Listen
April 22 – Aaron Mark Gage – Senior, Scarsdale High School - Creating a Difference for Autism - (Edited) Listen
(Unedited with references to Cho Seung-Hui) Listen
April 17 – Dennis Debbaudt – Autism Risk & Safety Management - Listen
April 12 – Hulet Smith – OTR/L, HC/MBA - Observations from The Center for Life Therapy, Pune, India - Listen
April 9 – Portia Iversen – co-founder of Cure Autism Now (now part of Autism Speaks), Emmy-winning art director, Advocate, Author, Strange Son - Listen
April 6 – Jane Hersey – Director, The Feingold Association and author of Why Can't My Child Behave? - Listen
April 5 – Veronica Federiconi – Executive Director, Autistic Services, Inc. - Listen
April 5 – Josh Richards and Rick Henderson – Wrestling Autism - Listen
April 3 – Gary Lee Kuhre – Stride 4 Autism Foundation - Listen
March 26 – Mark Johnson – Nationally recognized activist and community organizer, and Director of Advocacy at the Shepherd Center in Atlanta, Georgia - Listen
March 8 – Anita Cameron –Systems Advocate, Regional Center for Independent Living - Listen
March 5 – John R. Vaughn – Chairperson, National Council on Disability - Listen
March 1 – Angela Madsen –Founder and Director of California Adaptive Rowing Programs (CARP) and National Adaptive Rowing Team Member 2002-2006 - Listen
February 22 – Mark Zupan –Bronze Paralympian Rubgy Athlete, Star of “Murderball”, Speaker and Author “Gimp: When Life Deals You a Crappy Hand – You Can Fold or You Can Play” - Listen
February 15 – Kari Dunn Buron – Autism Educational Specialist and Author, “A 5 is Against the Law! Social Boundaries: Straight Up! An Honest Guide for Teens and Adults” - Listen
February 13 – Dr. James M. Boles – CEO and President, People Inc. - Listen
February 12 – Thomas Schmidt – Staff Attorney, Home School Legal Defense Association (HSLDA) - Listen
February 9 – Barbara Jackins – Attorney, Author and Parent. “Legal Planning for Special Needs in Massachusetts: A Family Guide to SSI, Guardianship, and Estate Planning” - Listen
January 31 –Mary Jeffords – Mary Jeffords, President, Injured Workers of New York, Inc. - Listen
January 21 – Len Bourret – Writer and Self-Advocate. - Listen
January 17 – Michael Alan Northrop – Author, Speaker and Self-Advocate. - Listen
January 14 – Rick Ritter – MSW, Social Worker and Author, “Coping with Physical Loss and Disability: A Workbook”. - Listen
January 7 – Marie Sherrett – Parent, Advocate, Writer and Speaker. - Listen
January 4 – Dr. Lara Pullen – CEO, Healing Thresholds. - Listen
December 29 – Jamie Manning – songwriter, musician, advocate, and father of a son with HF autism has written an album of songs entitled 'What Remains'. - Listen
December 15 – Dee Dee Farrington – Is there really life after being on dialysis for 30 years? AND Lisa Walker, Founder – Faith Travels. - Listen
December 14 – Dr. Gunvant Oswal, G-Therapy is a pioneering treatment for a variety of Neurodevelopmental disabilities like Cerebral Palsy, Mental Subnormality, Autism, Down Syndrome, Global Delays, etc., invented by Dr. Gunvant Oswal. - Listen
December 13 – Dr. Stephen Kuusisto, author of the acclaimed memoir Planet of the Blind, a New York Times “Notable Book of the Year” and Only Bread, Only Light, a collection of poems from Copper Canyon Press. Dr. Kuusisto’s has another new book, Eavesdropping... A Memoir of Blindness and Listening. - Listen
November 29 – Robbin Miller, Potential Plus and Associates Potential Plus provides disability training and videos that educate the community about disabilities including award winning, Promoting Olmstead: Improving Community Based Services for Persons with Disabilities (2005).- Listen
November 27 – Lisa Lieberman, MSW-LCSW, Author, “A Stranger Among Us” This one-of-a-kind book discusses the pros and cons of hiring in-home care providers for family members with autism spectrum and other neurological disorders.- Listen
November 22 – Joe Borzynski, Musician and father shares information about a very special Christmas CD that will benefit autism agencies in the NY area - Listen and Paul O’Lone, Accessible Fitness, Accessible Fitness is a completely wheelchair accessible gym, specializing in adaptive fitness - Listen
November 19 – Terry Scott Cohen and Dr. Barry M. Cohen, Author, “DisAbled & Challenged – Reach for your dreams!” - Listen
November 12 – Special Veterans Day Show: Interview with Disabled American Veterans Bradley Barton, a combat disabled Vietnam War veteran, AND David Gorman, Executive Director of DAV www.dav.org - Listen
November 5 – Commissioner Christine Griffin, Equal Opportunity Employment Commission - Listen
November 1 – Peter Flom, Non-Verbal Learning - Listen
October 29 – Jeffrey S. Klare, founder and Chief Executive Officer of Hire Disability Solutions, LLC. www.hireds.com - Listen and John Miller, Publisher Careers & the disABLED Magazine, the nation’s leading career magazine for people with disabilities. http://www.eop.com/ - Listen
October 25 – Senator Steve Paterson - Listen
October 11 – Tracy A. Panzarella, M.A./CCC-SLP/L, Licensed Speech-Language Pathologist/TSHH and Director of Clinical Services, Autistic Services, Inc. - Listen
October 4 – John Gunnar Box, President, The Colours Wheelchair Company – Mobility wheelchairs for the latest innovative manual wheelchairs on the market. http://www.colourswheelchair.com/ and Aaron Fotheringham, 14-year old elite wheelchair athlete and his mother Kaylene Fotheringham - Listen
October 2 - Dr. Roy Grizzard, head of Office of Disability Employment Policy, U.S. Department of Labor - Listen
October 1 – Kelly O’Meara, Award winning investigative Reporter and Author PSYCHED OUT: How Psychiatry Sells Mental Illness and Pushes Pills That Kill - Listen
September 20 – Tracy Paradowski, Chair, SafeMinds Autism Walk in Buffalo
September 1 – Special interview with Josh Blue, winner of NBC’s The Last Comic Standing - Listen
July 9 – Alex Moshenko, Al’s
Wrestling Talk
http://www.alswrestlingtalk.com/
July 5 – Jon Gilmore, Service Coordinator, ARISE, Inc. and
Michelle Dubois, David Guernsey, Amos Dubois, and Julian Green
http://www.ariseinc.org/ - Listen
July 2 – Dr. Phil Bate, Auditory Brainwave Training
http://www.drbate.com - Listen
June 21 – Annie Abrahamson, Director of Marketing, Encourage
Software
http://www.encouragesoftware.com/ - Listen
June 18 – Frank Tetto, Father and Advocate, My Community Care
Team
http://www.mycommunitycareteam.com/ - Listen
June 14 – Scott W. Gehl, Executive Director, Housing Opportunities
Made Equal
http://www.homeny.org/ - Listen
June 11 – Michael Abramowitz, Managing Director, SoundBytes
(an affiliate of Independent Living Aids)
http://www.soundbytes.com/ - Listen
June 7 – Lois L. Thibault, Coordinator of Research, The Access
Board
http://www.access-board.gov/ - Listen
May 28 – Erin Shamberg, Director of Member Services, Dating4Disabled.com
http://www.dating4disabled.com/ - Listen
May 24 – John H. Gray, Master Craftsman and Saddle Maker Gray’s Custom Saddlery and Western Store http://www.grayscustomsaddlery.com
Katherine Albrecht, Founder and Director, CASPIAN and Co-author
“Spychips: How Major Corporations and Government Plan to Track Your
Every Move with RFID”http://www.nocards.org -- http://www.spychips.com
- Listen
May 17 – Tina Patterson, Parent, Advocate, Author “Trouble in School.. How to Navigate the School System” Tina is a Board Certified Behavior Analyst who consults with school districts and a parent of a child with a disability. After many years of personal and professional experience, Tina has written a short handbook for parents of children experiencing academic and behavior problems, to help them learn the basics for navigating the school system "Trouble in School." This book offers parents practical guidelines for working with educational professionals to secure the assistance their child needs to be successful in the classroom. “Trouble in School” also provides parents and caregivers with information regarding environmental events that put their children at risk for academic, behavior problems, and nation-wide resources that are available to help them. www.troubleinschool.com
Yvona Fast, Writer, Speaker, Author “Employment for Individuals with Asperger Syndrome or Non-Verbal Learning Disabilities: Stories and Strategies” Yvona Fast is an author, freelance writer, food columnist, editor, researcher and speaker. NLD affects every area of life. While NLDers are usually intelligent, articulate, well read, persistent, and dependable, faulty visual-perceptual, motor, organizational, and social skills combine to make life tasks most people take for granted arduous. Because NLD is not yet included in the DSM, children and adults struggle to get appropriate accommodations and services. Because most people with NLD look normal and are intelligent, when problems – usually with interpersonal communication – rear their head at school or work, teachers and employers are puzzled. Kids are teased and shunned; many adults are lonely and underemployed. www.wordsaremyworld.com - Listen
May 14 – Dave Whalen, Parent/Advocate and
DD Awareness Trainer
BJ Stasio, Presenter, Self-Advocate
2006 W.N.Y. Developmental Disabilities Awareness Day Conference Find
out about all of the great speakers and activities during this premiere event
for consumers, their families, professionals and the general public. In 2005
over 1,500 people attended the conference and 33 workshops were offered to
attendees. This year’s conference on Thursday, May 18 promises to be
the biggest and best DD Day ever at the Buffalo Convention Center! Tune in
to hear about the workshops, keynote speaker, performances, and how to register!! http://www.ddawny.org/ - Listen
May 10 – Pastr S'Wayne S’Wayne is a Gospel Hip-Hop Rapper sharing updates about his life offering encouragement and hope! S'Wayne has received numerous awards for his music over the last ten years and founded a ministry for the Urban/Hip-Hop culture. He has been the first person to record five solo projects with a tracheostomy tube. He and his family continue to touch many people’s lives through their music (Urban Gospel Showcase) and their faith. http://cdbaby.com/cd/pastrswayne
Rachel Newstead – Ragtime Music Composer Since Rachel
was 12 she has been fascinated by the music on the soundtrack from the movie, “The
Sting” and Scott Joplin, composer. She started piano lessons at sixteen,
for the express purpose of playing ragtime, but having cerebral palsy made
that endeavor quite difficult-- instead, she decided to compose, which only
became possible with the help of a music notation program called Finale Notepad.
All those melodies occupying space in my head now have somewhere else to
go-- beyond my home in central Wisconsin, USA. Tune in to hear some samples
of her ragtime music and more! http://hometown.aol.com/knudsenmj/myhomepage/Rachel.htm - Listen
May 7 – Lee Grossman, President
and CEO, Autism Society of America (ASA) Lee is past president
of the Autism Society of Hawaii and has been on ASA’s
Board of Directors (BOD) since 1995. Throughout his tenure Dr. Grossman has
served in a variety of positions including President of ASA in 2001. During
this time, he was also appointed by Health and Human Service Secretary Thompson
to serve on the Interagency Autism Coordinating Committee (IACC), which is
tasked with coordinating autism efforts among all of the federal agencies.
In 2003, when a historical change to ASA’s bylaws went into effect,
Grossman was selected as Chairman of the Board. Under his leadership, ASA
has made tremendous progress in promoting autism awareness, research, and
funding. Tune in to hear the latest news, upcoming annual conference and
MORE! http://www.autism-society.org/ -
Listen
May 3 – Pat Howey, Advocate, Author and Speaker - Wrightslaw Speakers Bureau. Pat Howey is an advocate who has helped parents obtain special education services for their children with disabilities since 1986. She also helps parents resolve special education disputes with their school districts. Pat is an active member of the Council of Parent Attorneys and Advocates (COPAA). In 2004, the Learning Disabilities Association of Indiana honored Pat with its Outstanding Service Award for her commitment and compassion towards students with disabilities. As a member of the Wrightslaw Speakers Bureau, Pat provides training for parents, educators, and others who want to ensure that children receive quality special education services. Wrightslaw programs are designed to meet the needs of parents, educators, health care providers, advocates, and attorneys who represent children with disabilities.
Pat will be sharing information about the upcoming Wrightslaw Law and Advocacy program, sponsored by Greater Rochester S.A.F.E. in Rochester, NY on May 17. http://www.wrightslaw.com/speak/06.05.ny.htm - Listen
April 30 – Karen DeFelice, Author/expert: digestive enzymes for health, behavior, digestion, and neurological problems http://www.enzymestuff.com
Elly Tucker and Cathy Bollinger, Singer-songwriter - Rivanaa Music. CD's for children with autism and other developmental delays and social skills issues. http://www.rivannamusic.com/
Tracy Paradowski, Chairperson, SafeMinds Autism Walk (Buffalo, NY) and Sallie Bernard, Executive Director - SafeMinds. The first SafeMinds Autism Walk: Steps for SafeMinds will take place on September 23, 2006. http://www.safeminds.org/
Margaret Spoelstra, Executive Director, Autism Society Ontario – Canada. http://www.autismsociety.on.ca/ -Listen
April 26 – Amy Maguire, Co-Founder of Sandbox-Learning Personalized materials for each child are the ideal for learning and development. Sandbox Learning is dedicated to developing fun and engaging stories that help parents and professionals meet this need. Our collection of personalizable children’s books addresses skills essential for development and truly allows children to identify with these skills through the personalization. Tune in to hear how Sandbox Learning can provide your children with Customized Tools That Connect them to their goals, their community, and the world around them. Register for a free book online today! http://www.sandbox-learning.com/ -Listen
April 23 – Nic Carcieri Father of son Ben with autism, decided he wanted to do something to help promote awareness of autism. Nic has been a fan/collector of comic books for many years. He created a fabulous comic book called BOTS to help raise money for the Autism Society of America. http://projectautism.blogspot.com/ -Listen
Suzanne Wright, and Alison Singer – Autism Speaks. Suzanne and Alison, both personally affected by autism, want to help find a cure for autism by raising the funds that will facilitate and quicken the pace of research, to raise public awareness of autism, and to give hope to families. www.autismspeaks.org -Listen
April 19 – Tim Mueller, KindTree Productions, Inc. Dedicated to serving and celebrating the autism community through art, education and recreation. http://www.kindtree.org/
Caroline Alterio, President, New York State Occupational Therapy Association April is National Occupational Therapy Month. http://www.nysota.org/
Bill Stillman, Speaker, Columnist, Advocate and Author of books including, “Autism and the God Connection.” Demystifying autism from the inside out! http://www.williamstillman.com/ -Listen
April 16 – Olegario D. Cantos VII, Special Counsel to the Assistant Attorney General, Civil Rights Division, U.S. Department of Justice Ollie Cantos has worked for the Assistant Attorney General in the Civil Rights Division of the U.S. Department of Justice since August 2004. He started by serving as Special Assistant to the Assistant Attorney General and was recently named Special Counsel on Disability Matters to the Assistant Attorney General. A disability rights leader for more than 15 years, Ollie's work within the Division solely surrounds advancement and enforcement of civil rights for people with disabilities. Through these efforts, he endeavors to foster greater enforcement within a number of areas including tonight's topic -- expanding civil rights enforcement for crime victims with disabilities. http://www.usdoj.gov/crt/
Dr. Nora Baladerian, Child Abuse and Neglect Disability Outreach Project Dr. Nora Baladerian is a clinical and forensic psychologist who lives and works in Los Angeles, California. She has been working on issues of abuse and maltreatment as these affect children and adults with disabilities since the early '70's. She is the Director of the CAN DO Institute and has been the project Director of the CAN DO Projects in association with the Arc of Riverside since 1999. http://disability-abuse.com/
Mr. Cantos and Dr. Baladerian will share new information regarding the victimization of children and adults with disabilities today.
Veronica Federiconi, Executive Director, Autistic Services, Inc. Autistic Services, Inc. (ASI, since 1982) is the Western New York region's only agency whose primary mission is the delivery of a continuum of individualized services to individuals with Autism Spectrum Disorders. ASI is devoted to long-term education, treatment, and support of individuals with autism of all ages and functioning ability across home, school/treatment, and community environments. Veronica will share information about how ASI is involved in Autism Awareness Activities in April and much more!! ASI is also a sponsor of DisAbility News & Views Radio http://www.autisticservices.com
This show is in three files: Listen Listen Listen
April 12 – Dr. Tony Attwood, Clinical Psychologist, Author. Dr. Attwood is a world-renowned expert on Asperger Syndrome and author of the best-selling book of that name. Dr. Attwood has specialized in autism for over 20 years with a special interest in early diagnosis, challenging behavior and especially Asperger Syndrome. http://www.tonyattwood.com.au/
Dr. Diane Twachtman-Cullen, Communication Disorder Specialist and licensed Speech-Language Pathologist and Author. Diane Twachtman-Cullen, Ph.D., is highly respected for her work on behalf of individuals with autism spectrum disorders, is the Editor-in-Chief of Autism Spectrum Quarterly, better known as “The Maga-Journal” as it combines the readability and interest of a high-level magazine with the substance and depth of a professional journal. http://www.asquarterly.com -ListenApril 9 – John Gilmore, president of the New York Chapter of the National Autism Association. Their mission is to educate and empower families affected by autism and other neurological disorders, while advocating on behalf of those who cannot fight for their own rights.
Cleve Keller and Elizabeth Balzano, Spectrum Connections. Brandissimo! Inc. is a family entertainment production company that has produced new DVD’s and CD music series created for children on the autism spectrum. -Listen
April 5 – Linda Harmon, Parent/Advocate – Sharing information about upcoming “DAN Autism Conference” – April 10th is designated for nurses. Christian Schenk, Owner, Uncle Andy’s Place – Providing one-on-one musical instruction for children with ASD and other developmental disabilities.
April 3 – Bobbie Manning, Mother, Advocate and VP of the first and only national, nonpartisan political action organization, A-CHAMP, (Advocates for Children's Health Affected by Mercury Poisoning). A-Champ is dedicated to protecting the rights of the vaccine-injured and promoting legislation that will advance the interest of our children. “By parents, for our children.” http://www.a-champ.org/
March 29 – Vickie Rubin, Early Childhood Direction Center and Nicole Passantino, People Inc. Vickie and Nicole are co-hosts of an upcoming workshop for parents and professionals, “Balancing Discipline, Motivation, and Behavior with Best Practice.” with Dr. Eric P. Hartwig, national speaker on discipline, behavior, motivation, functional behavioral assessments, and dealing with challenging people. Click Here For The Conference Brochure.
March 26 – Eddie Tuduri, legendary drummer and musician, Founder and Director, The Rhythmic Arts Project (TRAP). The project is an education program utilizing drums and percussion to address many basic life skills in the field of developmental disabilities. Drums and therapy working hand in hand! http://www.traponline.com/
March 22 - Cara Liebowitz, 13 year old girl with mild
Cerebral Palsy Cara has developed an educational website, Abilities4u:
Helping Disabled People Everywhere. The goal of the website is to provide
clear and concise descriptions of all types of disabilities. http://www.webspawner.com/users/abilities4u/
Janine Morrison, Transition Coordinator & Community Integration
Specialist, Williamsville Central Schools The Office of Transition
Services presents their bi-annual Employment & College Night April
4th! Click
Here for More Information!
March 19 - Kathy Eiss, President, ASA-WNY Chapter, with Kathy Giordano and Jennifer Baxter, guest speakers for upcoming ASA-WNY workshop, “Strategies for Success Positive and Proactive Support Strategies for Individuals with ASD.” http://www.autismwny.org/
Megan O’Neil, Access to Assets Project Coordinator, World Institute on Disability (WID) and recipient of 2006 Paul G. Hearne/AAPD Leadership Award http://www.wid.org/
Ramesh Srinivasan, Vice President, MedicAlert Foundation International. Celebrating 50 years of helping protect and save lives! http://www.medicalert.org/
March 15 - John Miller, Publisher, Careers and the disABLED Magazine, “Hire the Disabled Career Expo”.
March 12 - Dee Alpert, Publisher, Special Education Muckraker will share updates and news in special education. http://www.specialeducationmuckraker.com/
March 8 - Thomas Bayuk, Author, “20 Years and STILL Coping and Prevailing...Multiple Sclerosis and other life struggles” Nearly twenty years ago, Thomas Bayuk was diagnosed with multiple sclerosis. "I was not what one would have considered to be a humble man," he writes. "I had always been loud, proud, boisterous and extroverted. "One day, though, on his way to work out at the gym, Bayuk was changed forever. Coping and Prevailing is his moving story of fear, anger, denial, and frustration but more importantly, it is his story of rising above these obstacles and learning to accept the diagnosis of MS. With an authentic blend of honesty, humor, wisdom, pathos, and a deep faith in God, Bayuk leads you on a journey of victorious self‑discovery. From the shock of diagnosis to the grace of acceptance, he invites you to see MS as a marathon, a challenge, as an opportunity to learn, to accept, and to overcome. “When playing poker, you have to play the hand you are dealt,” he writes. “The same is true of life. The real champions are the ones that win with mediocre hands. You can do this, you can beat this, but you have to make the choice to do so.” http://www.copingandprevailing.com/ "A journey that is logical, spiritual and fool proof for overcoming any of life's difficulties.”
Helen Selsdon, American Foundation for the Blind By reviving
the legacy of Anne Sullivan Macy through a new online museum, the American
Foundation for the Blind (AFB) is helping educators find creative ways to
teach children about vision loss and the amazing woman who pioneered education
for the blind. Anne Sullivan Macy Online Museum introduces the world to Helen
Keller’s famous teacher and offers teachers and parents great resources
for learning about vision loss. The American Foundation for the Blind (AFB)
is a national nonprofit that expands possibilities for people with vision
loss. AFB's priorities include broadening access to technology; elevating
the quality of information and tools for the professionals who serve people
with vision loss; and promoting independent and healthy living for people
with vision loss by providing them and their families with relevant and timely
resources. AFB's work in these areas is supported by the strong presence
the organization maintains in Washington, DC, ensuring the rights and interests
of people with vision loss are represented in our nation's public policies. http://www.afb.org/
Expanding possibilities for people with vision loss!
"The most important day I remember in all my life is the one on which my teacher, Anne Mansfield Sullivan, came to me." —Helen Keller
March 5 - Bob Kahn, Deputy Sheriff, D.A.R.E. and Author, “Bobby and
Mandee’s Too Safe for Strangers”
Our children's safety is a world-wide concern. Since 1991, Deputy Kahn has
developed and perfected a Stranger/Danger Program. Every child deserves protection
and the best protection starts with the child's ability to perceive danger
and respond appropriately. Imagine if your child were taken from you. How
would you react? Take control and let those, like myself, instruct your child
and turn a potential tragedy into a celebration of life. Make every child
a hero instead of a statistic. Act now. I invite you to join me. Child safety
is not just a national issue. It is one that knows no boundaries. http://robertkahn.freeservers.com/
March 1 - Barbara McManus and Jeannie Dickinson, Mother and Daughter
Advocates Making a Difference Prader-Willi Syndrome Association (USA) Barbara
McManus (grandmother) and Jeannie Dickinson (mother of Jessika) will share
their personal stories and provide answers to questions such as: What is Prader-Willi
syndrome? Is PWS inherited? How prevalent is Prader-Willi syndrome? How is
it diagnosed? What treatment is used? What does the future hold for children
and adults with PWS? Barb and Jeannie will share news and upcoming events.
PWSA (USA) is a strong national organization of families and professionals
that offers a toll-free helpline, a bimonthly member newsletter and numerous
publications about PWS, an annual family conference and scientific meeting,
and chapters throughout the country to provide local family support and advocacy.
Through research, education and support, PWSA (USA) strives to improve the
quality of life for all individuals living with Prader-Willi syndrome. http://www.pwsausa.org/
February 26 - Carlana Stone Lawson, Author, Never Give In, Never Give
Up
A beautiful, successful and privileged seventeen-year-old, Carlana Stone
Lawson had it all: she was a gymnast, cheerleader and president of her class.
In a moment of bad judgment, she got into a car with some friends in Dallas,
Texas, after a night of drinking. A terrible accident occurred, and everyone
walked away unscathed except for Carlana, who never walked again.
What would follow is a twenty-year journey of overcoming adversity through perseverance, self-discovery and personal victories. In her book, Never Give In, Never Give Up, Carlana Stone shares how she searched for a stem-cell miracle cure in the Soviet Union, at the height of the Cold War; survived and overcame an abusive relationship; became the first wheelchair-bound on-air reporter in Miami, and pushed her way into Hollywood to become a highly successful television producer.
Make sure you tune in to be inspired for how to soar through life’s real hardships. http://www.carlanastone.com/
February 19 - Kathy Seward MacKay and Stacy Milbouer,
Authors, Dying In Vein: Blood, Deception…Justice
Tainted blood activists reveal why the government and drug companies have
blood on their hands (literally). --Two women fight to provide a voice for
tainted blood victims
It is the largest medical disaster North America has ever seen. It continues still. And worst of all, it was totally preventable. Thousands of innocent people died and continue to die as a result in a country with the best health care; government regulated medical services, and FDA-approved drugs. Yet, somewhere they failed. A nation was devastated and the story behind it has been brushed under the rug…until now. Dying In Vein, is the first ever photography book (with accompanying text) to deal with the tainted blood crisis and show the faces of the victims behind this tragedy. More than that, both women have been personally affected. Mackay lost her husband David when he was only 33 years old to hepatitis, which he contracted during a routine treatment for hemophilia. Milbouer, a cancer survivor who has undergone many blood transfusions was a close friend of David MacKay. Kathy and Stacy, authors of the award winning book, will provide answers to the detailed history of the tainted blood crisis, how this tragedy could have been prevented, what the FDA and Pharmaceutical companies have done to own up to their devastating mistakes and who has been held accountable to date and more. http://www.dyinginvein.com/
February 15 - Lisa Thorson, Jazz Vocalist, Artistic Director, Educator,
Arranger and Composer- JazzArtSigns See, Hear, Feel the Music!
Acclaimed Vocalist Lisa Thorson Improvises with Her Band, American Sign Language
Interpreters, and a Painter, Along With Live Audio Describer and Text Captioner
Making Live Jazz Accessible To All People With and Without Disabilities
In celebration of their 25th Anniversary Seasons, VSA arts of Massachusetts and Wheelock Family Theatre are pleased to present JazzArtSigns, Lisa Thorson’s groundbreaking multimedia, multi-sensory and interactive improvised jazz performance piece for all audiences on Thursday, March 9, Wheelock Family Theatre, Boston. JazzArtSigns performers include Lisa Thorson, vocals; Cercie Miller, saxophones; Tim Ray, piano; David Clark, bass; George Schuller, drums; Nancy Ostrovsky, improvisational painter; Jody Steiner and Misha Derrisaint, ASL interpreters; Vince Lombardi, audio describer; and Don DePew of The Caption Coalition.
JazzArtSigns features a group of world-class jazz musicians, an improvisational painter, American Sign Language (ASL) interpreters, a live audio describer and text captioner, as well as program information in Braille, large print and on tape. This interactive fusion of improvisation, music, visual art, and language encourages all audiences to participate in the spirit of acceptance, innovation and cooperation. Created in 1999 by veteran jazz vocalist, composer and Berklee College of Music Associate Professor Lisa Thorson, JazzArtSigns provides a universally accessible, cross-disciplinary concert experience that redefines the way audiences interact with live performances.
JazzArtSigns creator Thorson, a wheelchair user, comments on her artistic vision. “Through JazzArtSigns I hope to inspire new mainstream artistic projects that will take a holistic view of access to the arts — one where access is an element in the creative process rather than an add-on that restricts creativity. With JazzArtSigns, the ASL interpreter and painter trade fours with the band and everyone improvises. This is what makes this event so unique.” The creator and lead artist of JazzArtSigns, Lisa Thorson is an acclaimed Boston-based jazz vocalist, composer and educator. She has toured the U.S., Canada and Italy as a concert artist and jazz clinician, and has produced five recordings as a leader. Lisa has been a leader in the advocacy for full access to the arts for people of all abilities since 1980. She co-founded Next Move Unlimited, one of the first professional theater companies to bring performers with and issues of disability to the stage. She worked for over 15 years as an arts accessibility consultant with the National Endowment for the Arts and numerous non-profit, corporate and public organizations, including five years on the Board of the MA Cultural Council, a state agency. http://www.lisathorson.com/
About VSA arts of Massachusetts Now celebrating its 25th anniversary year, VSA arts of Massachusetts works to leverage access for people with disabilities through the arts. VSA arts of Massachusetts leads through a consortium of school systems, cultural institutions, universities, and human service agencies to creatively leverage programs, services, policy, and events in three program areas: 1) Create art programs in the schools to integrate students with and without disabilities, 2) Create programmatic and physical access to cultural and other public facilities, 3) Create sustainable opportunities in the arts for people with disabilities. VSA arts of Massachusetts represents part of an international network of VSA arts organizations founded in 1974 by Jean Kennedy Smith as an affiliate of The John F. Kennedy Center for the Performing Arts. Inclusion teaches us that all means all. Everybody. No exceptions. The arts invite people to leave familiar territory, to explore new answers and seek new questions. The arts offer a means to self-expression, communication, and independence. By learning through the arts, students become lifelong learners, experiencing the joy of discovery and exploration, and the value of each other's ideas. VSA arts is committed to driving change - changing perceptions and practice, classroom by classroom, community by community, and ultimately society. http://www.vsamass.org/
About Wheelock Family Theatre Wheelock Family Theatre celebrates its 25th year of creating intergenerational and multicultural productions that provide a shared experience for the whole family. Their productions celebrate the diverse range of families found in the world today and seek to unite them in the shared experience of live theatre. WFT is especially dedicated to those who are historically under-served: people of color, people with disabilities, and low-income families. www.wheelock.edu/wft
February 12 - Michael Marshall, Singing Coach Does singing improve reading skills? Using unique "learn-to-sing" SingingCoach software helps children improve their reading. What has proven to be a popular learn-to-sing software combining cutting edge technology with the expertise of a veteran vocal coach has been taken up an octave - so to speak. For the past year, Carry-a-Tune Technologies' SingingCoach(tm) has allowed anyone to become a better singer using his or her personal computer. Now SingingCoach Version 3.0 offers a great new platform for some fresh downloadable features, including: * Multi-User Capability for Sing-Alongs, Duets & Harmonies * Advanced Instruction Platform with New Video Based Tutorials It's a product that combines cutting edge technology with the expertise of a veteran vocal coach -- and it allows anyone to become a better singer using their personal computer. SingingCoach now gives users instantaneous professional feedback without having to hire an expensive vocal instructor. SingingCoach software installs easily on a personal computer and makes it fun to sing better. SingingCoach includes a patent-pending vocal range analyzer that makes any song easy to master. The software's pitch tracking line gives real-time feedback on singers' performances as they sing. This allows them to see and hear, note for note, exactly where their pitch, rhythm and tempo need to be corrected. No musical experience or music reading capabilities are required to use SingingCoach. Both novices and experts make significant progress from the very first session. http://www.carryatune.com
Julie Garvey, Founder, The Pet Connection Programs, Inc. Dogs, puppies, cats and kittens that are unwanted or lost from Hurricane Katrina and other parts of the country are saved from horrifying and certain death in gas chambers! Julie Garvey, founder of The Pet Connection Program, Inc. and her dedicated volunteers are outraged that such inhumane methods still exist! Volunteers have rescued these loveable pets from out of town pounds that were going to gas pregnant and nursing animals due to overcrowding! Now over 60 animals are safe in our shelter due to the heroic acts of some great people! They sometimes drive over 10 hours to reach us or meet us in between to make sure these animals were given a second chance in life! Founded in 1984, The Pet Connection Programs, Inc. have provided many valuable services in WNY and Erie County area such as Pet Therapy and The Pet Food Bank. The Pet Connection Programs is a non-profit, 501c3, tax-exempt Special Care and Maternity Shelter. That means they take in animals with special needs, pregnant cats, orphaned and/or abandoned kittens/puppies. They have facilities to accommodate farm animals such as horses, sheep, pigs, guinea pigs and rabbits on 20 acres in the country. They operate 365/24/7 at one location, and none of the animals are fostered outside of the shelter. That means we take care all the animals left in our care, it is strictly controlled, which is better for the animals. We have so many great animals that will make a terrific addition to your family. Dedicated volunteers and donations needed to continue making a difference. Won’t you help? www.petconnectionprogramsinc.com
January 29 - Jeff Amann, Rane Bathing Systems & Twin Medical Products Twin Medical Company is a premier provider of medical equipment and service as a distributor of high quality institutional patient transfer and including specialty bathing systems. In August of 2002, Twin Medical Company bought Rane to further advance the product line. Jack Armstrong and Jim Dekraker remain partners in the business today with a singular vision, designing the best bathing systems in the world. Rane Bathing Systems is a manufacturer of residential and institutional handicapped accessible systems and walk-in tubs. This past November, Rane products were featured on the well known TV show “Extreme Makeover, Home Edition. Tune in to learn about the many products and services offered through Twin Medical and Rane Bathing Systems. “Nothing is more refreshing than a Rane.” http://www.ranetubs.com
Terri
Abrams, Advocate and Graduate, NYS Partners in Policymaking 2002 Terri
Abrams is a nurse and mother of three from Rochester, New York. She has been
involved in advocacy activities since 1993 and 2002 graduate of New York
State Partners in Policymaking Program. Terri will be sharing information
about her experience in the Program and how others can improve advocacy
and leadership skills by applying for this year’s NYS Partners in
Policymaking Program. Partners in Policymaking is an innovative national
model of leadership training for people with developmental disabilities,
parents and family members and designed to provide state-of-the-art knowledge
about issues and policies related to disability, and to develop participant
competencies to become more effective in influencing policy development
at all levels. The program is free of charge and all accommodations, meals
and training materials will be provided at no cost. Limited reimbursement
is available to cover transportation and childcare costs. Attendance to
training sessions is mandatory. The application deadline for 2006 Partners
in Policymaking is February 24, 2006. Apply online http://www.advocacycenter.com/partners.htm - Listen
January 25 - Dr. Kendra D. Johnson, Author "100 Things
Every College Student with a Disability Ought to Know" Ever
question how best to offer assistance to students with disabilities about
to enter college with unrealistic expectations compared to high school?
Most of us assume that it involves providing thorough explanations and
giving directions during special orientation and advisement sessions.
This "one size fits
all" method can prove to be the absolutely wrong thing to do according
to a a series of informal surveys and interviews conducted by Dr. Kendra
D. Johnson and Trudie N. Hine, authors of "100 Things Every College
Student with a Disability Ought to Know." Based on these interviews
and surveys, the authors cataloged key information which foreshadows what
will happen when the student enrolls in a college or university. Dr. Johnson
will share surprising findings and offer valuable information to help the
student take responsibility for their own disability while focusing on getting
into the right college as well as persisting through college. http://www.cambridgestratford.com
Chuck Root, Project Coordinator, The Community Employment Office The
Community Employment Office, in cooperation with the WNY Placement Partnership,
is an alliance of public and voluntary agencies working together to promote
integrated employment opportunities for individuals with disabilities in
the WNY region.The Placement Partnership is made up of approximately 30 Federal,
State, and local, not for profit agencies that are focused on employment
for individuals with disabilities. People Inc., Heritage Centers, Goodwill
Industries, Restoration Society, BOCES, Southeast Works, Aspire, Suburban
Adult Services, NYS VESID and NYS DOL are the most recognizable members of
the Partnership. Chuck will also share information about a new SSA program
called Transition Works and how you can get involved in this year's "Disability
Mentoring Day." Chuck is a wonderful example of someone who goes the
extra mile for individuals with disabilities looking for employment and a
career! www.wnyceo.com - Listen
Dr. Stanley Klein, Clinical Psychologist, Educator and Author
Reflections from a Different Journey: What Adults with Disabilities Want
All Parents to Know Most parents of children with disabilities, as well as
professionals, lack personal experiences with adults with disabilities.
Hearing from successful role models who have lived the disability experience
can provide essential information about the possibilities for children
with disabilities. For Reflections from a Different Journey: What Adults
with Disabilities Want All Parents to Know, successful adults with many
different disabilities — cerebral
palsy, Down syndrome, autism, learning disabilities, deafness, blindness,
mental illness, developmental disabilities, spina bifida, muscular dystrophy,
attention deficit hyperactivity disorder, congenital amputation, and chronic
health conditions — wrote essays about something they wished their
own parents had read or been told while they were growing up.
Dr. Stanley co-edited with John D. Kemp with a Foreword by Marlee Matlin, Academy Award winning actress who is deaf, is a book of forty inspiring and realistic essays by successful adult role models. In preparing their essays, each author was asked to write about something they wished their own parents had read or been told while they were growing up. John Kemp’s Afterword describes his experiences growing up as a person with a disability. Stanley D. Klein, Ph.D., clinical psychologist and educator, founded DisABILITIESBOOKS, Inc. in 2002 and serves as Director of the company. He also serves as Series Editor, People with Disabilities Press. www.DisABILITIESBOOKS.com - Listen
January 15 – Harvey Alter and Joan Peters, Executive Director - National Aphasia Association (NAA) Over one million people in the United States have aphasia, a communication disorder that is the result of stroke or brain injury. Harvey Alter will share his personal story about aphasia and about his remarkable recovery from a stroke. He has become a passionate advocate and was Chair of the NAA’s Strategic Planning Committee. He has become an inspiration to many! Joan Peters was the co-editor of the American edition of “The Aphasia Handbook: A Guide for Stroke and Brain Injury Survivors and their Families.” She has worked with disability organizations for the past ten years. Joan will share information about the new “National Aphasia Association (NAA) Bill of Rights.” This declaration marks a significant juncture for the NAA’s advocacy efforts. The organization’s mission is to reconnect people with aphasia with the community by educating the public, encouraging the use of local resources, and advocating on behalf of those who are left, literally, without a voice. It is the only national organization that is dedicated to raising aphasia awareness among the general public. The NAA provides information through publications and many resources online. http://www.aphasia.org/Ken Jacuzzi, Entrepreneur, Advocate, Activist and Author of Jacuzzi: A Father's Invention to Ease a Son's Pain. Most of you are familiar with the Jacuzzi tub because it was an upgrade to your super bath or because you drank too much in one on spring break or during a mid-life crisis. But do you know why it was invented? Tune in to hear Ken Jacuzzi share information about his life and autobiography. This book tells stirring stories of this Italian family immigrating from Italy and setting up shop here in America, how they acted as pioneers in many areas of engineering (they invented the first enclosed cabin monoplane, for example), and how they survived as a family. Ken Jacuzzi has traveled, learned, taught, and worked on three continents. He has an MBA, speaks four languages, patented inventions, painted portraits, and also has a severe disability. Ken’s memoir celebrates entrepreneurship, his beautiful Italian wife, people with disabilities, their caregivers, and the undeniable value of each one of us. Ken’s motto is “Regardless of the curveball you are thrown, life is worth it!” http://www.kenjacuzzi.com/ - Listen
January
11, 2006 – Dr. W.R. (Bill) Klemm, Scientist
and Author, "Thank You Brain For
All You Remember. What You Forgot Was My Fault." How many
students want to make better grades? How many working adults want to look
sharp? ... impress? ... have an impact? How many "baby boomers" are
frightened by the discovery that their memory is starting to slip? How many
elderly are tired of being embarrassed and inconvenienced by their failing
memory? Dr. Klemm reviews the science news that everyone can use to help
them have a better memory. The book provides fresh ideas about how to improve
memory. Over 150 key ideas for improving memory.
Dr. Bill, your Memory Medic! http://thankyoubrain.com/index.htm
Scott Adams, Founder of Celiac.Com and creator of The Gluten-Free Mall® Celiac disease, also known as gluten intolerance, is a genetic disorder that affects 1 in 1331 Americans. Scott’s mission was to help as many people as possible with celiac disease get diagnosed and living a happy, healthy gluten-free life. In that regard the site has proven to be an overwhelming success, and has become an invaluable resource to people worldwide who seek information about celiac disease and related disorders. The Gluten-Free Mall offers the best quality, top selling gluten-free products and made them available in our new state-of-the-art warehouse. We offer low product and shipping costs, and the convenience of being able to choose from hundreds of gluten-free products and have them shipped to your door in a single, convenient delivery. http://www.celiac.com/ - Listen
January
8, 2006 – Robert Bennett, Author, “The
Blind Traveler Down a Dark River”
Robert is a Social Worker and freelance writer who writes from personal experience
about the barriers, both physical and societal, that people with disabilities
are challenged by every day. Robert’s articles have spanned a wide range
of topics from how computers and technology can change the life of a person
with a disability to issues of grieving and adoption. His work has appeared
numerous publications including The New York Times, The Green Bay Press-Gazette,
Tennis, Women's Sports+Fitness, Able Newspaper, Virtual Reality Special Report,
Accent on Living and WE Magazine. Using Words to Change Attitudes! http://www.enablingwords.com/
Shirley Cheng, Author and Advocate Can a star shine so brightly that no darkness remains?? Are you having a bad day? Then meet Shirley Cheng, A.K.A. the modern Helen Keller. “Although I'm blind, I can see far and wide; even though I'm disabled, I can climb high mountains," says Shirley Cheng. This is the kind of spirit and attitude that has allowed her to go for the gold medal and accomplish her life's passions, including writing and publishing three books by the age of 21 (The Revelation of a Star's Endless Shine: A Young Woman's Autobiography of a 20-Year Tale of Trials & Tribulations, Daring Quests of Mystics, Dance with Your Heart: Tales and Poems That the Heart Tells) among many other achievements. This miracle survivor will empower, inspire, and motivate the audience to reach for their stars, whether they are disabled or non-disabled. "I'm not disabled, I'm ultra-abled." --Shirley Cheng http://www.shirleycheng.com/ - Listen
January 4, 2006 – Dr. Rosemarie Rossetti – Speaker and Author, Take Back Your Life! Rosemarie will inspire and inform listeners how to live your life with conviction and a new home project “Universal Design Living Laboratory.” www.rosemariespeaks.com
Randy Black Schantz, NYSLIC Travel & Transportation and Mental Health Counselor Randy will share information with listeners about how she not only has adapted to the challenges in her life but rising above it all. It really is about having a positive approach in ALL you do! - Listen
December 28 – Michele Fried, Founder & Director, Adoption STAR, Inc. STAR stands for Support, Training, Advocacy and Resources Many people today are lost and confused when it comes to adoption planning. Now there is an agency to offer them guidance. Adoption S.T.A.R. is a Non-Profit (501c3) New York State Authorized Adoption Agency, is a compassionate and unique organization. Adoption S.T.A.R. allows prospective adoptive parents and birth parents to explore all the adoption options and to receive the appropriate information and education necessary to access those options including Special Needs Adoption. Special needs is a broad term and can mean a child of any race born with physical, emotional and / or cognitive challenges. Children with special needs may have Down Syndrome, or perhaps be born affected by prenatal drug and alcohol abuse, or have other cognitive, physical and/or medical challenge. The agency has a passion for identifying homes for infants who are at risk for entering the foster care system. Adoption S.T.A.R. is an agency dedicated to maintaining connections between adoptive families and birth families and offers education and support with an Open Adoption plan. Most importantly, we have the ability to offer personalized attention to prospective adoptive parents and birth parents. We offer our support, knowledge, assistance, and most importantly, our friendship, to make this process easier. http://www.adoptionstar.com
December 18 – Graciela Sholander, Co-Author, Dream It. Do
It: Inspiring Stories of Dreams Come True It’s a far too common
scenario: Someone’s mired in a dead-end
job, their life lacks purpose, and they’re stuck in a perpetual rut.
They have dreamed of doing something different, unusual and so much better,
but they are convinced they will remain just that – pipe dreams that
may make it easier to fall asleep at night, but harder to get up and face
the same old day. Now there really is help on the way; tangible, realistic
and powerful tips from the authors of Dream It. Do It, Inspiring Stories
of Dreams Come True.. Call Graciela Sholander and Sharon Cook ‘dream
catchers’ or ‘life fulfillment coordinators’ … but
they do one thing exceedingly well – they help people make dreams
reality. Dream It Do It: Inspiring Stories of Dreams Come True is available
at Amazon.com and Barnes & Noble.com.
www.dreamitdoit.net
Steven T. Truesdale, Activist, Advocate and Journalist Are you living in a snowy winter wonderland? For children and adults with disabilities, including many elderly folks, winter is a time that is not wonderful and impossible for them to get out of their homes. Often sidewalks are not shoveled and streets not plowed and inaccessible. Steven will share information about these accessibility issues (ADA) and important contact/resources. Mr. Truesdale has worked for the last two decades in the field of public relations, as a liaison to the local and state government process within the disabilities advocacy community, and as a freelance print & broadcast journalist. A veteran of work with the Boards of Directors of three local Not-for-Profits, among Steve's most recent efforts was the development of Taking Control, a Consumer Directed Personal Assistance program currently offered by the Western New York Independent Living Project, Inc. From 1995 to 1997, Steve was Executive Director of the County Office for the Disabled, and as such, functioned as the coordinating officer for Americans with Disabilities Act compliance throughout Erie County in New York - Listen
December 14 – Christine Muller, The Independence
Foundation The
Independence Foundation is dedicated to providing support and assistance to
physically disabled individuals so that they may live independent, self-directed
lives. It is our goal to provide opportunities for the physically disabled
in accessible housing (partnering with People Inc.), employment, social activities,
community involvement, and recreation (Power Wheelchair Soccer). Tune in
to hear about how they got started, how they are filling gaps in the system
for individuals with physical challenges. www.TheIndependenceFoundation.org
Rosie O’Grady Ravish, “Music is Hope” CD
-- Summit Educational Resources The Music is Hope CD is a special
fundraiser to benefit children served by Summit Educational Resources.
Summit Educational Resources is Western New York’s largest not-for-profit
agency dedicated to serving children, birth to age 21, with autism spectrum
disorders and other complex developmental disabilities. Special Artists
on the CD include The Goo Goo Dolls, Ani Difranco w/ Amungus, Last Conservative,
The Juliet Dagger, Alison Pipitone, Katrina Carlson, Milkfat, the debut
track from Klear featuring new lead vocalist A. Lewis, new GC artists Agent
Me, Terry Sullivan and Damien Simon. This CD makes a perfect stocking stuffer!
ONLY $10.00 donation to Summit Educational Resources. http://www.summiteducational.org/
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Listen
December 11 – Wes Bledsoe, Founder, A Perfect
Cause Each year vulnerable adults and children die from exposure
after walking away from their homes, as well as their assisted living and
nursing home residences. Long-term care residents and family members with
Alzheimer’s,
dementia, autism and other developmental disabilities tend to be especially
vulnerable. Learn about these important but simple precautions recommended
by Wes Bledsoe. Mr. Bledsoe is the founder of the not-for-profit nursing
home watchdog group, A Perfect Cause. http://www.aperfectcause.org/
Kent Healy, co-author,“Cool Stuff They Should Teach in School” We
are facing an epidemic! Each year millions of students graduate from our
schools and a startling percentage are very unprepared for the real world.
There are basic skills that every person MUST know in order to function
in the real world—and
it’s all "Cool Stuff." We like to
refer to these skills as the "fundamentals of life. It’s our
goal to help others not only survive, but also thrive in the real world.
Tune in to hear more! http://www.coolstuffmedia.com/
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Listen
December 7 – Judith Rogers, Author, The Disabled Woman's Guide to Pregnancy and Birth For disabled women who are pregnant, or are contemplating pregnancy, there’s often a feeling of loneliness and a lack of knowledge about what to expect. Thankfully, they’re not alone any longer. Rogers’s wonderful new book—actually, it’s a revised second edition of Mother-to-Be: A Guide to Pregnancy and Birth for Women with Disabilities (1991)—addresses every question you may have. How will your disabilities affect the pregnancy? How do you go about choosing the best doctors for you and your baby? What diet is best for pregnant women? Are disabled women less likely to deliver a baby naturally? What’s the scoop on the post-partum blues? Though chock-full of practical advice, the real strength of this book is its emotional honesty. Rogers interviewed dozens of disabled women—women with cerebral palsy, spina bifida, lupus, multiple sclerosis, post-polio syndrome, dwarfism and more. The experiences of these women—who were both thrilled and terrified to find out they were pregnant—are woven efficiently throughout the text. Rogers deserves special kudos for her recognition that women are under a lot of pressure to have children, and the challenges faced by disabled women are that much greater—but challenges that will be alleviated with this comprehensive guidebook.
Judith Rogers, who is disabled and has two children, is the pregnancy and parenting specialist at Through the Looking Glass, a National Resource Center located in Berkeley, California. Since its inception in 1982, Through the Looking Glass has been the main resource nationally and internationally for disabled parents. Judith Rogers was honored to be a Robert Wood Johnson Community Health Leader in 2002. http://www.demosmedpub.com/book173.html
Teri Garr, Mother, Actress and Ambassador and Author, Speedbumps: Flooring It Through Hollywood In October of 2002, actress and comedienne Teri Garr made it public that she has MS. After years of uncertainty and secrecy surrounding her diagnosis, Teri explained her reasons for deciding to share her private battle with the world, "I'm telling my story for the first time, so I can help people. I can help people know they aren't alone, and tell them there are reasons to be optimistic because today treatment options are available."Since Garr announced publicly that she had been diagnosed with multiple sclerosis, she has become a leading advocate in raising awareness for MS and the latest treatments for the disease. Tune in to hear Teri’s story! http://www.penguinputnam.com/ - Listen
December 4 – Allison Janse, mother and co-author, The Germ Freak’s Guide to Outwitting Colds and FluThe above information from the Food and Drug Administration and the
Center for Disease Control.
Certified Germ Freak Mom Allison Janse gives readers some answers on how to
avoid the common cold and survive flu season with their health and sanity intact.
This is the practical information your doctor won't give you (they always say
not to worry and may be giving you the latest bug by not washing their hands
when they examine you!), but which you're almost literally dying to know, such
as:
November 30 – Sandra Tang, New York Volunteer Coordinator, “Wrapping for Inclusion” The Bubel/Aiken Foundation is excited to announce its Second annual nationwide holiday gift-wrapping fundraiser, “Wrapping for Inclusion” beginning November 20, 2005 through December 24, 2005. During the holiday season, area stores and shopping malls set up gift-wrapping booths for their customers. In exchange for a donation to the Foundation, our volunteers will work the booths for the stores and malls. Everyone is welcome and encouraged to participate in any way possible. The possibilities are endless. Sandra is looking for volunteer wrappers to staff the booths across New York State throughout the holiday season.
We hope you can join us this holiday season as we “Wrap for Inclusion” The
purpose of this fundraiser is to bring national attention and awareness to
The Bubel Aiken Foundation and its mission to foster inclusion. http://www.thebubelaikenfoundation.org/
Diane Bubel, Mother, Disability Activist and Co-Founder The Bubel/Aiken Foundation The
Bubel/Aiken Foundation (TBAF), founded by RCA recording artist Clay Aiken
and Diane Bubel, envisions a world where people with developmental disabilities
are totally immersed in all life has to offer. The Bubel/Aiken Foundation
serves to bridge the gap now existing for young people with developmental
disabilities between full inclusion and today’s reality. The Bubel/Aiken
Foundation provides services and financial assistance to promote the full
integration of children with disabilities into the life environment of those
without. The Foundation strives to create awareness about the diversity of
individuals with disabilities and the possibilities that inclusion can bring. www.bubelaikenfoundation.org
To learn more about The Bubel/Aiken Foundation or ways YOU can get involved TUNE IN online to hear the LIVE interview at http://www.disabilitynewsradio.com/ - Listen
November 27 – Christopher Klicka, Senior Counsel, Home School Legal Defense AssociationGreg Palmer, author, “Adventures in the Mainstream, Coming of Age with Down Syndrome” Award-winning writer and producer of PBS documentaries and plays for families, chronicles two of the most important years in the life of his son, Ned, who has Down Syndrome – the time when he’s making the transition from high school to work. This intimate and often humorous account is woven with vivid anecdotes concerning school, family, relationships, and work. This insightful and absorbing book offers the reassurance to other parents and enlightens us all about what’s really involved- for father and son, in a young man’s important journey from adolescence to adulthood. http://www.woodbinehouse.com/
Cynthia S. Kidder, author, “Common Threads, Celebrating Life with Down Syndrome” Common Threads is an essay and photographic celebration of inspirational accomplishments of people with Down syndrome. Photographs are by nationally recognized Kendra Dew. "Coffee table books" are often overlooked--or left in sight but never opened. The exceptional quality of the text and photographs which make up the many short vignettes ("Artists," "Athletes," "Brothers and Sisters"...) in this striking book make this a book with a difference. Cynthia Kidder is the mother of three sons, the youngest of whom has Down syndrome. She is a writer and presenter to families and educators regarding maximizing the potential of young people with Down syndrome. Cynthia is also the founder of Band of Angels Press, a national outreach organization dedicated to helping children with Down Syndrome reach their full potential. http://www.bandofangels.com/ - Listen
November 23 – Amelia Davis, photographer and author MY Story: A Photograph Essay on Life with MS, Amelia Davis is a gifted photographer. "I capture reality through my photography. Reality can be hard to look at, but, by confronting and exploring it as in my photographs, one can face fears and perhaps come to terms with them."
Davis has also taken it upon herself to educate others about the disease. "Those of us who have MS need to speak out and be active in educating the newly diagnosed and the general public," Davis says. "It is only through knowledge that we can discredit the stereotypes of what a chronic illness looks and feels like.” Along with using her words as a medium to educate, through speaking at fundraising and educational events for MS, she has also shared her message through her art. Her photographic book, My Story: A Photographic Essay of Life with Multiple Sclerosis (Demos Medical Publishing, March 2005), presents portraits of 32 people living with MS, through photos, personal stories, and secondary accounts from those who love them. She shows how multiple sclerosis preys on people from all walks of life by providing an outlet for individuals of different ages, ethnicities and socio-economic background to have their stories told. Make sure you get a copy of this book at www.demosmedpub.com
Laura Lewars- Master Herbalist, Certified Natural Health Professional Back in 1998, Laura was four and half months pregnant her vision suddenly became very blurry and subsequently became worse. After seeing several medical professionals, the following year she was labeled with MS. During the next several years had “attacks” and after seeing neurologist number four, convinced her the latest wonder drug for MS was the best for her (Copaxone). She began to experience a rapid decline and was unable to walk. In February 1999, Laura hung up her cane and stopped using these medical approaches. For the next few years, Laura embarked on reading tons of research as well as information about supplements and nutrition. Laura spent time with chiropractors, herbalists and naturopathic medicine which changed her life. Tune in to hear about Laura’s journey to heal herself naturally and how she educates others with MS. - ListenNovember 20th – Kathie Snow, mother, author and speaker - Disability is Natural!
Kathie is the wife of Mark, the mother of Emily and Benjamin (who are both in college), and a zealous promoter of new ways of thinking about disability. Her book, Disability is Natural: Revolutionary Common Sense for Raising Successful Children with Disabilities, 2nd Edition, is the culmination of over 14 years of experience as a public speaker, trainer, and consultant on disability issues. Kathie believes it's time for new perspectives about disability, and she created the Bowl of Apples logo to illustrate that just as a green apple is more like red apples than different, individuals with disabilities are more like people without disabilities than different. In addition to her book, Kathie has produced an enlightening and provocative video, and a line of products and a variety of articles---new ones are added regularly---to share the revolutionary common sense that disability is natural! The Disability is Natural web site is brought to you by BraveHeart Press, the family-owned business of Kathie Snow. The mission of this site is to encourage new ways of thinking about disability and to help create a society in which all people are valued and included. http://www.disabilityisnatural.com/index.htm
Dallas Berg Harris, widow of Art Berg, author and inspirational speakerUtah's 1981 Junior Miss, and 1992 Mrs. Utah USA, Dallas, was married to Art Berg in 1985 and together had three children. Dallas shares her experiences and views of her life as wife to the late Art Berg. Art Berg was the author of two regional bestsellers, Some Miracles Take Time and Finding Peace in Troubled Waters, and was the president of Invictus Communications, Inc. He spoke to hundreds of professional and civic organizations each year touching many people’s lives. Art Berg passed away suddenly and tragically on February 19, 2002 just weeks before the publication of, The Impossible Just Takes A Little Longer. In February 2003, The Impossible Just Takes A Little Longer was given the “Books for a Better Life Award” for best motivational book of 2002. Art’s daughter McKenzie said, “He built bridges with words, and those bridges live on in his book.” http://artberg.netpagz.com/index.html - ListenNovember 16th – A special tribute and memory of Gerda Wharton – my inspiration, my best friend and my mom! - Listen
November 13 – Brenda High, Mother,
Advocate and Executive Director of Bully Police USA.
Jared High was 12 years old when older students
bullied him in his middle school. The bullying came to a head when a well-known
bully assaulted Jared inside his middle school gym. Because of the bullying
and the assault, Jared began to show signs of depression, which included
lack of sleep and emotional outbursts. On the morning of September 29, 1998,
just six days after his 13th birthday, Jared called his father at work to
say good-bye. While on the phone with him, Jared shot himself, dying instantly.
As a healing project, Brenda began to write Jared’s story, published
as www.jaredstory.com.
Since 1999, JaredStory.com has attracted over a million visitors looking
for information on bullying, depression, suicide and needing healing from
the loss of a loved one. As the Director of the national organization, Bully
Police USA, Inc., Brenda has recently written, “The
Perfect Anti Bullying Law,” which is an excellent model for lawmakers
to follow when they write their State anti bullying laws. She teaches the
importance of anti bullying laws, and how to lobby, in teleconferences to
educators, media, program directors and parents, many who have children suffering
from bullying. Reports and grades States on their anti bullying laws. Bully
Police USA posts current anti bullying laws, research, news, and support
information for parents and/or anti bullying activists who are dealing with
bullying in schools. http://www.bullypolice.org
Joel
R. Steen, author, Home Room 7B - Joel shares his story about overcoming
school bullying in the newly released book, Hoom Room 7B. Joel's story is
a "must
read" for anyone who
has been bullied or anyone who has been a bully. His helpful insights in
his epilogue are another "must read" for school guidance counselors,
classroom teachers, school district administrators, and parents. Joel Richard
Steen is a freelance writer. Born in 1965, he is the middle child of three
boys. Because he was raised in the small rural southwestern Minnesota town
of Tyler, Joel obtained one of his most prized life possessions, small town
values. In addition, he has also worked with instructing mentally/physically
challenged adults, law enforcement, and finally submitted to his love of
writing in the spring of 2005. One of the goals that Joel has is working
diligently with school districts promoting anti-bullying awareness by crusading
to get his story accepted in the schools curriculum as recommended reading.
Joel has adapted the popular phrase, “Sticks and Stones may break
my bones, but your unkind words forever scar me.” http://www.freewebs.com/home_room_7b/index.htm
Steve
Breakstone, Consultant, Balance Educational Services - “Expect
Respect, the Bully Proofing Program,”Steve will share
strategies to reduce bullying and social aggression which will help
create a classroom that minimizes disruptive behavior, maximizes
learning and provides an emotionally safe environment, Empower students
through powerful methods that teach and model effective, assertive
communication. Teach students necessary skills for dealing with disappointment
and frustration. Maintain dignity and self-respect during conflicts.
Learn the necessary skills for working with difficult, angry or aggressive
students. Steve Breakstone is a specialist in violence prevention,
behavior management, and effective communication styles. During his
dynamic workshops, Steve uses his theatrical experience to address
and role-play serious realities such as being bullied, being the
subject of rumors or being shunned by cliques. http://www.balanceeducation.net/expect_respect.htm -
Listen
Wednesday, November 9 – Henry Winkler Pens Fun Series
Based Loosely On His Own Childhood. The Latest Book, My Secret Life As A
Ping-Pong Wizard
Award-winning actor and director Henry Winkler, along with well-known
children’s media producer Lin Oliver, has co-written a book series inspired
by his true-life experiences growing up with undiagnosed dyslexia. Hank Zipzer:
The World’s Best Underachiever chronicles the adventures of Hank Zipzer,
a high-spirited and funny fourth-grader with learning differences. In funny,
honest prose, this series will speak to all young people, especially those
who have learning differences. This project is very close to Henry Winkler’s
heart, since as a child with undiagnosed dyslexia, he always felt like a
classic underachiever. Looking back he is proud to say, “At one time
it was so hard for me to read a book. It is so monumental for me to be able
to write a book. I want kids to be able to identify, laugh, and realize that
they’re
not alone no matter what their learning challenge is.”
Henry Winkler is an actor, writer, producer, director and first-time author. He overcame his learning differences and attended the Yale School of Drama where he received a Master of Fine Arts degree. His work in hits such as Happy Days, The Waterboy, The Practice, and Holes has turned him into a household name with whom no one would associate the term “underachiever.” Henry Winkler can be seen Monday evenings on a new CBS series Out of Practice. He lives in California with his wife and has three children.
Don’t miss this special interview with an extraordinary man, who has
made us all smile and continues too! http://www.penguingroup.com/
Andrew J. Imparato, President, American Association of People with Disabilities. Three
words that best describe AAPD: Unity, Leadership and Impact . . .
Unity, leadership and impact are the hopes and convictions of people with disabilities
and are necessary to ensure the future of inclusion promised by the Americans
with Disabilities Act (ADA). AAPD is the largest national nonprofit cross-disability
member organization in the United States, dedicated to ensuring economic self-sufficiency
and political empowerment for the more than 56 million Americans with disabilities.
AAPD works in coalition with other disability organizations for the full implementation
and enforcement of disability nondiscrimination laws. Since November 1999, Andrew
J. Imparato has served as the president and CEO of the American Association of
People with Disabilities, a national non-profit, non-partisan membership organization
of people with disabilities, their family members, and supporters. Imparato is
a nationally recognized expert on disability law and policy. A frequent speaker
and writer on disability issues, Imparato is particularly known for his work
to dispel myths about people with mental illness. He is also one of the chief
instigators of AAPD's "Spirit of ADA" torch relay, and its partnership
with Volkswagen, Audi, and others to raise the visibility of his organization
and the overall disability rights movement. Prior to joining AAPD, Imparato was
general counsel and director of policy for the National Council on Disability,
an independent agency advising the president and the congress on public policy
issues affecting people with disabilities. Imparato has also worked as an attorney
adviser with the U.S. Equal Employment Opportunity Commission, Counsel to the
U.S. Senate Subcommittee on Disability Policy, and staff attorney with the Disability
Law Center in Boston. This background propels Imparato to the forefront of the
battle to preserve the ADA. http://www.aapd.com/ -
Listen
November 6 – Marciya Snyder
Imagine being diagnosed
with a kidney disease at six years old, being on a dialysis machine at nine
and being told that you won’t be able to
do anything in your life because of it. For the last 30 years Marciya has
been on a dialysis machine and because of her condition, had many challenges
in her daily life along with being told by doctors she wouldn’t be
able to have her own children. Tune in to hear Marciya’s inspirational
story about the miracles that have happened in her life! She never gave
up believing!!
Robert Parish, Award-Winning Broadcast Journalist and Filmmaker
and Father
Robert Parish shares his personal story about his son
Jack, who was diagnosed in 1996 with autism and how he went on to create
documentaries that would shatter the common myths and misinformation about
Autism Spectrum Disorders (ASD). Parish produced a two hour-long public
TV documentary about his family’s
therapeutic journey with Jack “Come Back Jack” and “Come
Back Jack 2002”. Both have aired nationally on PBS and internationally.
In 2002 Parish produced and distributed a third documentary, “My
Son Jack …Diagnosis Autism” to educational organizations across
the US. In 2004 Parish created three new ASD projects, “Autism… Just
a Label?” which aired on PBS in Spring 2005 and his fourth film, “ASD…Heads-Up
for the Low-Down.” Mr. Parish’s documentary, “Rising
Above ASD,” available on DVD, explores the emotional ups and downs
of several families dealing with the autism diagnosis. Don’t miss
hearing Robert Parish, an internationally recognized Autism advocate! www.comebackjack.org -
Listen
November 2 – Dennis Francesconi, Mouth and Foot Painting Artists. Dennis Francesconi was 17 years old when he broke his neck in a water skiing accident. This injury left him paralyzed from the chest down. A few years later during his rehabilitation, he met his future wife, Kristi. Kristi encouraged Dennis to find an outlet to express his emotions. He chose writing, which began as a need to write his name and to recapture his identity. “I grew tired of being known as ‘X’ which was all I could scribble with a pen wedged between my fingers. So one day, in an act of frustration, I grabbed the pen between my teeth and just wrote my name,” said Dennis. Writing then turned into doodling, and over time, his talent developed. Dennis became an MPFA student artist in 1993, when a chance meeting with a fellow MFPA artist led him to apply to the Association. As his talent progressed, he took on more difficult art subjects and experimented with untraditional paint media. In 1999, when Dennis was promoted to a full member MFPA artist, he was able to fulfill his lifelong dream of coming off Social Security support.
Dennis has participated in about 70 exhibitions, which include shows in Los Angeles, New York, Chicago, and Atlanta, as well as Europe, Asia, and Australia. He currently lives in California and attributes much of his success to the MFPA. http://www.mfpausa.com/ Visit Dennis' website at http://www.sconi.com/
“Birds of Paradise in Abstract”
by Francesconi.
James Magill, Poet
Some of the root creative and time tested works of literature had their inspiration
and origins in the pain, hope, and suffering of experiencing life to its
fullest. Much of Mr. Magill’s poetry deals with the human condition,
as seen from the perspective of a person with a disability that began in
his earlier years, and the struggles and sacrifices made to participate in
the world as a contributing being. His work stretches from the often shallowness
of man's heart to the absolute triumph of his spirit over obstacles both
seen and unseen. His writing provokes the reader to better understand what
a person's will can overcome, create, and accomplish in the face of everyday
adversity. Mr. Magill’s poetry may not always express a joyful tone,
but to deny its honesty is an untruth in itself. In February of 2004 the "National
Arts & Disability Center,” a project of the University of California,
at Los Angeles UCLA, Tarjan Center for Developmental Disabilities, recognized
Mr. Magill’s writing talents on their website listed under "Literary
Arts"--- Poets and Writers. In April of 2004 the University of Toledo,
Disabilities Studies Program, recognized his writing abilities by posting
information on their website. Recently VSA arts, an international nonprofit
organization dedicated to the inclusion of people with disabilities into
the arts at large, added Mr. Magill’s biography on it Artists Registry.
VSA arts was founded in 1974 by ambassador Jean Kennedy Smith. VSA arts and
the John F. Kennedy Center for the Performing Arts announced their formal
affiliation effective 10/3/05. http://hometown.aol.com/jwm2125 -
Listen
October 30 – How to Avoid Halloween HangoverYour
little super heroes can have fun without becoming monsters the next day
- Jane
Hersey, Director of Feingold Association
What day do teachers call "the worst day of the year"? You guessed
it - the day after America's biggest candy holiday. But if you think we're
talking about too much sugar as the cause of Halloween Hangover, please think
again. Sugar certainly can make kids "hyper," but for the majority
of children, its effects are not likely to last into the next day and beyond.
And forget about the theory that your kids are being difficult simply because
they're excited (excitement would also wear off sooner.) So, if it isn't sugar
or the festivities that are to blame for your child's November 1st hangover,
then what is the culprit?
Halloween doesn't have to be a horror. Avoid the petroleum dyes and try not to let the kids overdo the sweets or eat them on an empty stomach. And do what many parents do: keep the candies out of sight (and out of mind), toss out a few each day, and try not to eat too many of them yourself! You will probably find that Halloween is a fun holiday again!
Learn about these and prevention hints from Jane Hersey, Director of Feingold Association. Editor of Pure Facts and author of “Why Can’t My Child Behave”, “Healthier Foods for Busy People”, and “What are all those funny things in food? And should I eat them.” Since 1976, the nonprofit Feingold Association has shown families how to find their favorite foods, but without the unwanted additives. http://www.feingold.org/ - Listen
October 23 – The Thinderella Syndrome – Lot’s of people have it! Dr. Dennis Gage tells his readers to “forget about the magic potions and fairy tales,” as well as harmful “yo-yo” dieting. Instead, look at a method that is realistic. Learn about the “Three R’s” approach that he believes can be the key to permanent weight loss and healthy living. The book offers behavioral, nutritional, and cognitive techniques s the components of a healthy lifestyle. Dr. Gage is an Endocrinologist and Obesity Researcher who specializes in Metabolism and Clinical Nutrition. He is the author of The Thinderella Syndrome: A Practical Guide to Individualized Permanent Weight Loss and is the Director of The Thinderella Lifestyle Change Program. Here is your chance to really “live a diet,” to have a healthy life, and to enjoy a method that makes sense, is permanent and ultimately successful. http://www.thethinderellasyndrome.com/.
Award Winning Filmmaker Making a Difference on Social Issues, Tolerance, and Acceptance - Jacky Comforty, Founder and President, Comforty Media Concepts. He is a filmmaker (with visual and mild learning disabilities) and the creator of the acclaimed Inclusion Series of video programs. The Inclusion Series is designed to inspire inclusive approaches to education and community life. Its programs are primarily meant for all people: parents of all children, educators, community groups, professionals, business people, all those who live and work with people with disabilities, which is to say again, all people. The programs’ premise is that each person is entitled to equal treatment under the law and, more broadly, respect, dignity, and opportunities for a fulfilling life within society. Seeing is believing, and these programs enable audiences to take a look at the possible. The programs in The Inclusion Series are documentaries; they focus on actual people and communities and on how they work together to make inclusion a reality. The programs create a sense of how the benefits of inclusion are extraordinary for all. Jacky Comforty is a visionary media artist and a popular speaker on a wide variety of subjects. One of his films The Optimists: The story of the rescue of the Bulgarian Jews from the Holocaust, opened theatrically in NY on Friday, October 21. It has been publicly shown in more than 50 cities around the world and won numerous awards including the Peace Prize, Berlin International Film Festival; First Prize for 'Documenting the Jewish Experience,' Jerusalem International Film Festival; and CINE Golden Eagle; Best Documentary, Hope and Dreams Film Festival. Comforty Media Concepts is an award-winning educational media production company that specializes in development and distribution of multimedia about social issues, history, art, science, and ethics. Our guiding philosophy is Compassionate Media Making. www.inclusionseries.com - Listen
Are you a victim of the Worker’s Compensation
System? - Joseph J. Morales
shares his personal story of the pain and suffering he endured on
the job and subsequent challenges with the Worker’s Compensation
System. Joseph is a disabled father with five children who believes that
many other injured worker’s in New York, Canada and across the USA
are unknowingly forced into an incredibly insane and evil system of injustice
that “neither works nor compensates,” as many are forced to endure
it for the rest of their lives. Unfortunately, spouses and children aren’t
excluded from the nightmare. Mr. Morales offers his suggestions to make positive
changes in a system that needs fixing! - Listen
October 19 – SPECIAL NEEDS PLANNING – Caring now and later - Bernice Polinsky has been intensely involved with autism issues and parent support since the diagnosis of her eldest son with High Functioning Autism (HFA) at age 19. A former teacher, Bernice is a board member of the parent-driven group AHA/AS/PDD. She is an editor of its newsletter, On The Spectrum, facilitates their support group for parents of older teens and adults, and helps to coordinate AHA's bi-annual conferences. She works with agencies and families to help in awareness of the particular needs of adult individuals with High Functioning Autism and Asperger Syndrome. http://www.aha-as-pdd.org/
Irwin Polinsky is an attorney who held various executive positions in cable television beginning with Sterling Manhattan Cable Television in 1967 and concluding with his retirement from Cablevision Systems Corp in December 2002. He is currently a consultant in telecommunications.
Roberta Koenigsberg, Director of Legal Affairs for YAI/National Institute for People with Disabilities, has been a lawyer for more than 20 years. She has been with YAI for 10 years and is extremely knowledgeable about special needs trusts, guardianships, wills and other key financial planning for parents, frequently lecturing on this topic. Ms. Koenigsberg is a graduate of New York University’s Law School, concentrating on special education and general issues affecting people with disabilities http://www.yai.org/
Arlington Heights Northwest Employment and Training Center - Sally Richards - Disability Program Navigator, will share timely information about the One Stop and Navigator initiantive. Under the policy direction of the Workforce Board of Northern Cook County, the area'sOne-Stop Career Center Systemoffers job seekers and employer’s alike access to a broad range of employment, training, education, economic development and labor market services at one convenient location. The goals are to support business growth by connecting employers to a well-prepared labor force, foster strong work preparation skills and empower job seekers with the information and support they need to make an informed decision leading to permanent, long-term work. These goals are supported by knowledgeable staff in a flexible environment with a commitment to customer-based continual improvement. Ms. Richards is in a marketing communications/research position at the Northwest Employment and Training Center in the Business and Career Services department in Arlington Heights Illinois. http://arlingtonheights.ietcnetwork.org/ - ListenOctober 16, 2005 - David
Morris, CEO and Co-Founder, Habitat International, Inc.
David Morris is the CEO and co-founder of Habitat International
Inc., a leading supplier of artificial-grass and indoor-outdoor carpet products
for The Home Depot, Lowe’s and other retailers. Habitat International Inc. is a socially
responsible business dedicated to providing jobs for hard-to-place workers.
Launched by David Morris and his father Saul in 1981, the Chattanooga, Tennessee
company has become a role model for other businesses, disability advocates
and the general public. Over the years, Habitat has won numerous awards for
its unique hiring practices and ongoing support of people with disabilities.
These honors include Employer of the Year, Employee of the Year, Olympic Torch
Run, O. Wayne Rollins Entrepreneur Award, Equality, Dignity and Independence
Award, Blue Chip Enterprise Award and many others. At Habitat, it’s the
people that matter most.
Mr. Morris frequently advises business owners around the country on how to
launch their own disability-hiring programs. A popular lecturer who speaks
from the heart, he is often invited to share his company’s story with
disability advocates, healthcare workers, special education teachers, civic
leaders and others who want to learn more about the realities of hiring people
with disabilities.
“All you need to do is open your heart a little and trust in people,” David
says of his longtime practice of hiring people with special challenges. “All
it takes is changing your paradigms and your mindset and realizing that disabled
people aren’t dumb. I understand how other businesspeople might be fearful.
But when you see a person who’s been told ‘no’ every day
of his or her life and now is saying, ‘Yes, I can do it,’ it’s
hard not to get inspired.”
In addition to hiring adults with disabilities, David frequently invites special-ed
vocational students to learn job skills at Habitat. He believes that educational
mainstreaming not only gives special-needs students a chance but also helps
other people let go of their fears about those who are different. Nancy Henderson
Wurst, author of the award winning book, “Able! How One Company's
Disabled Workforce Became the Key to Extraordinary Success", debuted
in 2005 tells the inspiring story of Habitat International. David Morris also
contributed a chapter in The Heart of America: Ten Core Values That
Make Our Country Great (2004, Health Communications, Inc.) by Bill
Halamandaris.
Tune in to learn about Habitat International. Their slogan "A Company
of Positive Distractions" to learn more about Habitat's philosophy
of love, kindness and compassion which honor the special diversity of the people
who work here! http://www.habitatint.com/ -
Listen
October 12, 2005 - Kristen
Schel, Director of Development - Special Olympics New York
Kristen will share information about Miles for Medals, a two-three
mile walkathon, is dedicated to raising funds and awareness for Special Olympics
New York and its programs. As families, friends, and supporters of Special
Olympics athletes, you can become an active part of your community by helping
others achieve their dreams. Why not join us, or better yet, start your own
team! http://nyso.org/MilesForMedals/home.php
Douglass Platt, Christopher Boles, and
Pat Reilly - People Inc.
People Inc. is sponsoring the first annual Disability Film and
Speaker's Series. The films will focus on disability history and culture and
are intended to educate viewers about disability and challenge stereotypes.
Speakers include Walter Brock, critically acclaimed documentary producer and
director whose work has been broadcast and shown all over the world; Arthur
Campbell, Civil Rights Activist and author of script of award winning film,
If I Can’t
Do It; Dr. Robert Bogdan, renowned author and disability studies professor;
Dr. Sharon Snyder, co-editor of new book and Assistant Professor at the Department
of Disability and Human Development, University of Illinois at Chicago; Dr.
David Mitchell, author of numerous books on disability studies and professor
at the Dept. of Disability and Human Development, University of Illinois at
Chicago who will discuss diverse issues confronting the disability community.
The goal of this series is to provide an entertaining and informative evening
for all in attendance. This series takes place at 7:00 p.m. every Thursday
night in October at the Dipson Market Arcade Film and Arts Center in downtown
Buffalo, NY. The Museum of disABILITY History is dedicated to the collection,
preservation and display of artifacts pertaining to the history of people with
developmental disabilities. The Museum offers educational exhibits and activities
that broaden the community’s awareness of an often overlooked, yet vital
part of our history. http://www.disabilityfilmfest.org/
Patrick F. Reilly, member of People Inc.
Board of Directors
Our Board of Directors is made up of thirteen people who work
(without compensation) on behalf of you -- the Western New York community --
in governing the organization. People Inc. is your organization -- in a sense,
you and your WNY neighbors "own" this
organization, and the Board considers itself to be the "owner’s representative." Pat
Reilly shares words of wisdom, insights and personal reasons why he has spent
the past 20 years volunteering his time to make a difference for all people
with disabilities. You will be inspired to be more and do more! http://www.people-inc.org/ -
Listen
October
9, 2005 - Rick Frame, AccessTX
- Your Texas Accessibility Experts. AccessTX is a leading
consulting company for accessible environments in Texas. We promote not only
education of accessibility laws but also the application of those laws in both
public and private facilities.
AccessTX is involved in research projects on both the local and state level.
We provide research related to users needs, materials, products and access
techniques. We also seek to influence legislation and regulations through research
into user needs and practical experience in applying solutions. AccessTX clients
include disabled people, architects, developers, service providers, local and
state government agencies and all those engaged in managing or developing facilities
of public accommodation in Texas. If you are an individual with a question
about your rights or a question regarding accessibility in your community please
contact AccessTX, we can help.
If you are a business and you want to take advantage of AccessTX's FREE service
or you need RAS services or a compliancy report in response to a noncompliance
complaint or litigation please contact AccessTX online http://www.accesstx.org/ -
Listen
October
5, 2005 - Rick Lavoie, Author, “It’s So
Much Work to Be Your Friend: Helping the Child with Learning Disabilities
Find Social Success.” This is the
first book to explain the direct connection between learning disabilities and
social isolation and offer practical strategies for parents, teachers, and
caregivers of children with learning disabilities. Extensive studies have examined
students with learning disabilities who have experienced chronic failure in
mainstream classes and adults with learning problems who have been unsuccessful
in the work place. Invariably, these studies have clearly demonstrated that
this failure is due to the person’s SOCIAL SKILLS, not his ACADEMIC SKILLS.
The majority of people with learning disorders have marked difficulty perceiving,
understanding and responding to social situations. Social isolation, rejection
and humiliation are often the result.Drawing on three decades of experience
in residential schools, Rick Lavoie provides powerful strategies for teaching
friendship skills in the classroom, the homefront, and the community. First,
you will explore the causes and consequences of "social incompetence." Then,
you will gain field-tested advice on how to help children work through daily
social struggles and go from being picked on and isolated to becoming accepted
and involved.
Rick Lavoie has served as an administrator of residential programs for children
with special needs since 1972. He holds three degrees in Special Education
and has served as an adjunct professor or visiting lecturer at numerous universities
including Syracuse, Harvard, Gallaudet, Manhattanville College, University
of Alabama and Georgetown. His numerous national television appearances include
CBS Morning Show, Good Morning Amedca, ABC Evening News and Disney Channel
Presents. Rick serves as a consultant on Learning Disabilities to several agencies
and organizations including Public Broadcasting Service, New York Times, National
Center for Learning Disabilities, Girl Scouts of America, Child Magazine and
WETA. He is a member of the Professional Advisor Board of the Learning Disabilities
Association. Rick is probably best known for his videos "How
Difficult Can This Be?: The F.A.T. City Workshop" and "Last
One Picked, First One Picked On: The Social Implications of Learning Disabilities".
These award-winning films have brought Rick's sensitive and compelling message
to countless thousands throughout the world. http://www.ricklavoie.com/ -
Listen
October
2, 2005 - Helen Walsh, Staff Member
at KRCB Radio/TV (NPR/PBS Affiliate) and Founder of project “Diverse
Disability Media” and
Robert Thomas, Master Control Air Operator at KRCB. Helen Walsh
is Founder of a project, “Diverse
Disability Media.” Her background is in all disciplines of the arts,
media and public relations as well as broadcasting. She has worked in the disability
community as both a volunteer and employed since age 13. Diverse Disability
Media has been running for over six years. Helen’s project provides areas
of connections for the disability community, organizations and media. Her project
also trains individuals with disabilities to pursue a career in media. Robert
Thomas, Master Control Air Operator at KRCB, was one of her former students
and now a colleague. Tune in to learn more about Diverse Disability Media projects
and find out all the steps Robert took to provide himself a career opportunity
in media. The information Helen and Robert share will assist others to find
creative ways to support their career goals. http://www.krcb.org/ -
Listen
September 28, 2005 - Dr. Mary Falvey, Parent and Author, “Believe
in My Child With Special Needs- Helping Children Achieve Their Potential in
School”. Every parent
is filled with dreams, fears, hopes, and questions when preparing a child for
school — and when that child has a disability, this exciting time can
seem overwhelming. This upbeat, reassuring handbook is an invaluable resource
to share with parents of a school-age child with a disability. It demystifies
complicated issues, encourages parents to celebrate abilities and recognize
possibilities, and tells parents everything they need to know to be successful
advocates throughout their child’s education. Drawing on her own experiences
as a parent of a child with a disability and as an educator, Mary Falvey helps
parents understand their child’s legal rights, pursue an inclusive education
for their child, from preschool to high school and beyond, develop transition
plans to help their child achieve their goals after high school and much more.
Candid and positive, this guidebook will be a trusted companion for parents
and a resource of insight for professionals seeking the parent perspective.
Candid and positive, this easy-to-read guidebook will be a trusted companion
for parents — and a helpful source of insight for professionals seeking
the parent perspective. http://www.brookespublishing.com/store/books/falvey-7020/ -Listen
September 25, 2005 - Connie S. Brown, Executive Director, Opportunities Unlimited of Niagara. For 50 years, Opportunities Unlimited of Niagara has been providing training, employment, residential, parenting, recreation, health related and support services to people with mental retardation or developmental disabilities, from newborn to seniors, and their families. The mission of Opportunities Unlimited of Niagara, a United Way agency, is to ensure that individuals from Niagara County with mental retardation or intellectually, physically or functionally limited, have the opportunity to reach their maximum potential, independence and integration into the community. Brown has been with the agency since 1988, serving first as program director of Day Services. She then served as vice president of day and clinical services and then as the chief operating officer; becoming Executive Director in 2000. As executive director, Brown has focused on five areas within the agency: quality programming; communication; financial stability; labor management relationship; and staff retention and recruitment. http://www.opportunitiesunlimited.org/ - Listen
September 21, 2005 - Frank Lovato Jr., Award Winning Jockey
/Inventor. Retired jockey Frank Lovato Jr., who was part of the
making of the movie Seabiscuit, will speak at a benefit dinner for The Pocono
Equestrian Center on September 24 at Shadowbrook Resort and Inn in Tunkhannock,
Pennsylvania. The Pocono Equestrian Center was formed in 2003 with the goal
of making an impact in the quality of children’s
lives. Lovato last rode competitively on September 19, 2004 at Arlington
Park in Arlington Heights, Illinois. He finished third in his final ride
aboard Kool Kool in the seventh race on the card. Lovato won 1,686 races,
including 21 graded stakes victories, during a 26-year career that began
in 1979. He won the Selima Stake (G1) with Bemissed in 1982. Lovato also
captured the Bashford Manor Stakes (G2) at Churchill Downs in 2001 with Lunar
Bounty and guided Pancho Villa to a victory in the Bay Shore Stakes (G2)
at Aqueduct in 1985.
In 1982 Frank built himself a horse made of wood and springs to simulate
riding maneuvers as a means to rehabilitate himself from a badly fractured
leg he had received from a racing accident. The wooden practice horse he
later named the Equicizer, amazingly helped him regain his strength, flexibility
and fitness. This idea was so well received by other jockeys that it inspired
Frank to devote himself entirely in the development of the Equicizer and
forming the Wooden Horse Corporation. The Equicizer is used by riders’ world
wide, building strength, skill, balance, flexibility, fitness and confidence.
Originally designed for jockeys to aid in practice and development of their
specialized skills, it didn't take long to realize the potential the Equicizer
and its little brother the Equipony had in benefiting other riding disciplines.
Recognized by riding programs for individuals with disabilities, sports medicine
facilities and riding academies, as well as the entertainment world where
the Equicizer was used extensively in the making of the movie 'Seabiscuit'. http://www.equicizer.com/
Beverly Peffer, Co-Founder and President, The Pocono
Equestrian Center. The
Pocono Equestrian Center was established in February 2003, by Beverly and Frank
Peffer, to help children and youth in need by giving them self-esteem, confidence,
and the skills to enhance their daily lives by having interaction with horses.
We are committed to training horses and riders safely. So the horses are not
abused, unwanted or neglected; instead they are cared for and loved by children,
which enables them both to emotionally heal.
As a public non-profit 501(c)(3) organization, we are committed to accomplishing
our mission while maintaining low overhead. Our programs are aimed towards
the children and youth that are in need or with illness', while providing
the family a chance of relief of the daily stresses of life. These children
and youth that need an extra boost to get through the difficult times in
their lives. The emotional satisfaction that the children and youth get by
interacting with the horses has a life long healing effect. This will enhance
their daily lives by giving them the opportunity to work with the horses.
The programs for the horses are as well rewarding. We evaluated each horse
to see if they would fit into our programs. Depending on the need of the
horse, we will then rehabilitate, and train the horse safely with Natural
Horsemanship Techniques. We will match the children's ability and previous
experience with horses, so they can get involved with the entire process.
If the horse doesn't fit into our programs, we will then put them into our
adoption program to find a good home. http://www.poconoequestrian.org/ - Listen
September 18, 2005 - Reed Martin, JD. Reed Martin is an
attorney who has concentrated on special education rights for over 35 years. He
is a graduate of the University of Texas School of Law where he was an editor
of the Texas Law Review and a director of the Moot Court Board. He was a
legislative assistant to the U.S. Senator who chaired the education subcommittee
as the Congress began developing special education laws. He practiced in
Texas for 22 years, working with over 4,500 families before moving to West
Virginia. Reed has also worked with attorneys and parents in all 50 states
on special education cases. He is a parent of a student who required special
services through IDEA (Individuals with Disabilities Education Act) and Section
504. Don’t miss this one
hour live show with Reed Martin!! http://www.reedmartin.com/
Doris Washington, mother, advocate, and author of “A Blessing, Caring
and Sharing.” There are times when people find their everyday life
moving downwards only to find themselves in a major crossroad after an incident
happens. And when they decide to bounce back, they are often confused what
do to next. Later people realize that an inspiration can help them reinvigorate
their life. Inspired by her son to write, Doris will share her poetry to
inspire people all around the world. http://www.xlibris.com/ - Listen
September 13, 2005 – Autism - Karen London, Esq. and
Co-Founder of the National Alliance for Autism Research (NAAR). NAAR
is the first national, non-governmental organization in the country dedicated
to funding and accelerating biomedical research for autism spectrum disorders.
In the past year, N.A.A.R. has funded approximately four million dollars
in grants for worldwide biomedical research projects. For more information
about N.A.A.R., please contact the N.A.A.R. website at http://www.naar.org/
Tracy Paradowski, Chair, Buffalo Walk FAR for NAAR. It's
time to get ready for the Fourth Annual Walk for Autism in Buffalo on Saturday,
September 24, 2005. Have you registered your team yet? This year’s
walk is in a new location, West Seneca Soccer Complex .We hope you will plan
on joining us again as we take steps to cure autism, now affecting 1 in 150
children today. Join us and make a difference for children and adults with
autism, and call 1-888-777-6227 ext. 56. or register online at http://www.autismwalk.org/buffalo
Christina Adams, Mother and Author, “A Real Boy: A True Story of Autism,
Early Intervention and Recovery.” When Christina Adams found
out that her son Jonah was autistic, she dove into his world in order to
bring him back to hers. In that new alternative universe, she questioned
her concept of what was "normal." Determined to uncover every secret and symptom of autism, Christina
was one of the lucky ones. Based solely on her dogged determination, Christina
was able to seize Jonah's limited window of opportunity for recovery. She assembled
and ran a cutting-edge educational and biomedical treatment program for him.
Jonah is now blossoming—full of wit, intelligence, and love. He is in
a regular school, has friends, and tests above age level in speech and I.Q.
Jonah's recovery has been groundbreaking, proving that if autism is recognized
early enough, it can be treated. More importantly, thanks to Christina, parents
can have hope, a sentiment that is greatly needed when one realizes that autism
has increased 857% in the past ten years. Tune in to hear Christina’s
story! http://www.christinaadamswriter.com/ -
Listen
September 11, 2005 - Dr. James F. Gardner, CEO, The Council on Quality and Leadership (CQL). At CQL, we believe in a world of dignity, opportunity and community inclusion for all people. In fact, our commitment to this belief is renewed and strengthened each day as we work to provide vision and leadership to human services organizations world wide. Through our services, publications and public presence, we establish real connections between disabilities theory and practice and help those who work with people with disabilities and people with mental illness take the important step from innovative ideas to everyday action. Dr. Gardner is an internationally recognized leader and visionary in the field of human services, a compelling speaker, teacher and writer. “Partners in Excellence; Leadership for the Journey.” http://www.thecouncil.org/ - Listen
September 6, 2005 - Barbara Jacobs, Author of Loving Mr. Spock. Understanding an aloof lover: Could it be Asperger Syndrome? Asperger Syndrome (AS) affects as many as one in ten people. With humor, optimism, and compelling honesty throughout, this is an insightful handbook that provides invaluable practical advice for all. Besides being an author, Barbara Jacobs is a psychologist, lecturer, and one of the most respected advice colummnists in the UK. http://www.futurehorizons-autism.com/
September 4, 2005 - Dr. Doris J. Rapp, Author of "Our Toxic
World: A Wake Up Call," International
Speaker and environmental medical specialist and pediatric allergist. We
now have epidemics of ADHD, cancer, fatigue, headaches, obesity, early puberty,
sterility, brain defects, muscle and visual problems to name only a few.
We must stop and figure out why. Eliminate the cause and there's nothing
to treat. Chemicals are major causes of today's health challenges. Find out
why you must make your own nest safe, now! http://www.drrapp.com/
Joni Hilton, Founder and President of Holy Cow Products, environmentally
safe, quality products for you and your family. http://www.holycowproducts.com/ -
Listen
August 30, 2005 - Joseph Canose, Vice President, Quality
of Life, Christopher Reeve Foundation."While
working towards a cure, there are millions of people with disabilities who
deserve an improved quality of life. It is my passion to help disabled individuals,
their families and caregivers in ways that will more immediately give them
increased independence, day-to-day happiness and improved access. Our Quality
of Life program is about freedom." --Dana Reeve http://www.christopherreeve.org/
Andy Howard, Ex. VP of Marketing, Purchasing and R & D for Wingstop Restaurants,Inc.
They are the Wing Experts! http://www.wingstop.com/
Alex from Buffalo says, "Wingstop is the Wing King that keeps you coming
back for more!" -
Listen
August
28 - Dee Alpert, Esq. and Publisher, The Special Education Muckraker
Ms. Alpert will share information on systemic special education issues and
tactics, including recent reports of abuse in NYS School for the Blind, Medicaid
Fraud as reported recently in the New York Times, No Child Left Behind and
MORE! Ms. Alpert is a retired NYC attorney specializing in Special Education
Law and one of the best ADVOCATES for children and adults with special needs
in the country! Don't miss this show as you need to know the real truth behind
these stories.
http://www.specialeducationmuckraker.com/ - Listen
August
21st's special guest: Andrew K.Cuddy, Esq. - Disability Law
Mr. Cuddy will share information and insights about agencies that utilize
false allegations to "kidnap" elderly and disabled people living in group
homes. AARP recently reported on these tactics in its monthly magazine. The
State and Mental Hygiene Legal Services supports the use of these tactics
to the detriment of the incapacitated individual. Families are threatened
with arrest and otherwise intimidated for having contact with their family
member. Mr. Cuddy will discuss specific cases of families that advocate for
proper services for their child/sibling and how the agencies made false allegations
against members of the family to restrict family involvement. These families
failed to be intimidated by false accusations and have been in legal proceedings
for the past few years. Tune in to learn more on Sunday from 5-6 PM!
www.cuddylawoffice.com - Listen
August
14th's special guest: John de Miranda, National Association on Alcohol, Drugs,
Disability, Inc.
The National Association on Alcohol, Drugs and Disability Inc., (NAADD) promotes
awareness and education about substance abuse among people with co-existing
disabilities. The mission of NAADD is to create public awareness of issues
related to alcoholism, drug addiction, and substance abuse faced by persons
with other co-existing disabilities, and to provide a peer approach to enhance
access to services, information, education and prevention through the collaborative
efforts of interested individuals and organizations nationwide. Mr. de Miranda
, Executive Director of NAADD will share important information about discrimination
that people with disabilities face attaining treatment, and during recovery.
http://www.naadd.org/ - Listen
August
7th's special guests: Cory Stroke, Buffalo Sled Hockey
As the name suggests, the game is a variation of ice hockey, played on ice,
with nets, sticks and pucks.There are, however, no skates.Each player is
seated on a metal sled, with a skatelike runner or two under the seat, and
uses two sticks that are shorter versions of those used in regular ice hockey.
The nonblade end of the sticks have metal “picks” that the players use to propel
themselves up and down the ice on their sleds, while handling the puck. Sled
hockey is a sport that allows individuals with physical disabilities to enjoy
an adaptive version of traditional ice hockey, with a similar concept and rules.
In sled hockey, the main difference is that instead of standing up to skate,
participants sit on their skates using an adaptive device known as a sled,
which is affixed with two skate blades and a runner in the front to form a
tripod. Also, competitors use two shortened hockey sticks with a pick (similar
to the end of a figure skate) on one end, which enables them to propel themselves
across the ice, like cross country skiers. Checking and high-speed slap shots
are common features of the sport. Tune in to learn about this exciting
sport!
http://buffalosledhockey.com/
Guido
Corona, IBM Worldwide Accessibility Center
IBM's Guido Corona, a marketing professional who is also
blind from the IBM Worldwide Accessibility Center, will share information
about IBM's continuing partnership with the National Federation of the
Blind and current initiatives including: Summer Camps, Home Page Reader
Donation and Project View Initiative. For nearly a century, IBM has championed
the advancement of worldwide accessibility standards in collaboration with
regulatory bodies and leading IT organizations. Among its many milestones and "firsts" --
including hiring the first disabled employee in 1914 and developing the first
Braille printer in 1975 -- IBM also unveiled a global network of Worldwide
Accessibility Centers in the United States, Europe, Japan, Australia, China
and Brazil to accelerate accessibility product compliance internally, while
providing global accessibility services to IBM customers. Tune
in to find out why IBM Worldwide Accessibility Center is the leader
that set the standard for accessibility for all people and continues
to do and be more! http://www306.ibm.com/able/
July
31st special guests: Mary L. Graper, President, The Wilson's Disease Association
The Wilson's Disease Association
(WDA) is an international, all-volunteer organization serving patients,
families, and friends.Wilson's Disease is a genetic disorder that causes
excessive copper accumulation in the liver or brain. It affects about one
in thirty thousand people worldwide. The Wilson's Disease Association funds
research on Wilson's Disease. They offer education and support
to all those affected by Wilson's Disease and strive to increase awareness
about Wilson's Disease. WDA sponsors an annual conference
and support meetings for Wilson's Disease patients and their families and
friends. http://www.wilsonsdisease.org/index.html
Julie Wegscheid
and Mike Chevrette, Metropolitan Center for Independent Living
MCIL is one of eight Centers
for Independent Living in the State of Minnesota and one of almost
500 internationally. They will inform you about the Independent
Living philosophy, MCIL programs, and provide you with information
that you need to live independently. Independent
Living Centers are typically non-residential, private, non-profit,
consumer-controlled, community-based organizations providing services
and advocacy by and for persons with all types of disabilities. Their
goal is to assist individuals with disabilities to achieve their
maximum potential within their families and communities.Also, Independent
Living Centers serve as a strong advocacy voice on a wide range
of national, state and local issues. They work to assure physical
and programmatic access to housing, employment, transportation,
communities, recreational facilities, and health and social services.
These are just a few of the services offered. http://frontpage.mcil-mn.org/graph.htm
Scott
Rubin, President,
Great Ideas Inc.
The Award-Winning line of Solution ComfortSeat® Personal
Hygiene Assistive Products has been helping many people improve their
way of living, retaining or restoring their independence and dignity,
by allowing users to toilet themselves at the press of a button.
Each hospital-quality Solution ComfortSeat® unit is designed
to wash a user completely clean after using the bathroom, without
the need for toilet paper. For people who find it painful, difficult
or impossible to wipe with toilet paper because of their special
needs, a Solution ComfortSeat® is their solution. Proud
recipient for 2004 and 2005 of the Caregiver Friendly Award
winners, from Today’s Caregiver
Magazine. http://www.comfortseatinfo.com/ - Listen
July 24th's special
guests: Eusacia Cutler, mother of Temple Grandin, International Speaker
and Author of "A Thorn In My Pocket"
Eustacia Cutler has written
the story of raising the non-verbal, often-violent child that Temple Grandin
was 50 years ago. A Thorn in My Pocket captures the years
it took to nurture her through tantrums, to protect her from the 50's label
of "infant schizophrenia" brought on by what was then believed
to be "frigid mothering,” and to keep her from being warehoused
in an institution for the retarded. Had Eustacia not won her visceral and
intellectual battle with the social and medical community as it was then,
Temple Grandin might not today be a university professor and perhaps the
most famous autistic person in the world. The world would have been robbed
of a beacon of hope to all afflicted with the disorder. A Thorn in
My Pocket enthralls the reader with the author's death-lock struggle
with her own identity, with the protean mysteries of Temple's autism, and
with her husband's belief that his daughter should be institutionalized.
A story of angst and guilt, myth and reality, family and society, Eustacia
weaves a literary masterpiece as broad as all humanity. Today, researchers
believe that signs of autism can be detected as early as six months of age,
a hopeful advance because autism is now affecting as many as one child in
every 166, increasing by approximately 10% annually, and early diagnosis
is critical to a child’s being able to live a productive life. www.futurehorizons-autism.com
Michael J. Carley, Executive Director,
The Global and Regional Asperger Syndrome Partnership (GRASP)
Grasp is an educational and advocacy organization serving individuals
on the Autism Spectrum. GRASP already has many professional affiliations.
GRASP works in tandem with parents’ organizations such as New York
Families of Autistic Children, AHA/AS/PDD (Advocates for Individuals with
High-Functioning Autism, Asperger Syndrome, and Pervasive Developmental Disorder;
also a professional organization) and The Connecticut Autism Spectrum Resource
Center; service agencies such as JobPath, YAI (Center for People with Disabilities),
and New York City Special Education School District 75; research institutions
such as those set up at NYU’s Center for Brain Health; and with advocacy
organizations such as Advocates for Children. Starting out, GRASP is focusing
on expanding support group networks, education, outreach, and building a
database to construct the most comprehensive website of its kind. In the
future, GRASP’s
goals will also incorporate issues of health, advocacy, and monitoring. As
the Executive Director of GRASP, the largest organization comprised of adults
on the autism spectrum, Michael J. Carley has spoken at a plethora of conferences,
hospitals, universities, and health care organizations. www.grasp.org Special
interview with one of the sponsors of DisAbility News & Views Radio Show:
Karl Smith, founder of Accelerations Educational Software.
Accelerations Educational Software makes software that is especially
effective for individuals with autism and other learning disabilities.
We incorporate behavioral methods that allow even very low functioning
individuals to usually become independent learners. Our software was
initially designed for autistic children but even most typical young
children also love the program. Our first product, the DT Trainer,
was created by our founder for his own autistic son. The product emulates
therapy from behavioral psychology that has been shown to be effective
with autistic children. From these beginnings, the product is now being
evolved by literally a community of teachers, centers of excellence,
autism specialists, academics, researchers, and parents. http://www.dttrainer.com/index.html
July
17th's special guests: Mark Weber, Kingdom Bound 2005, Send A Friend Program. This
will be the 19th annual Kingdom Bound Festival at Six Flags Darien Lake Resort
and the third year annual Send A Friend program. The goal of the
program is to send individuals with disabilities and underprivileged individuals
along with their families, to a day at Kingdom Bound 2005.
The program provides a positive environment, combined with fun and enriching
programs along with hope for the future!! Since it's inception in 2003, over
1000 individuals have taken part in the Send A Friend program. This
year, the main speaker is Reggie Dabbs, one of America's favorite youth communicators.
Through his incredible comedy skills and intense story telling ability, he
challenges youth to meet their problems head-on and overcome them. He emphasizes
that "you can never change the past, but you can change the future." In addition
to Reggie there will be dozens of internationally known speakers and artists
which Send a Friend participants will enjoy throughout the day, along
with over 100 rides, shows and attractions at Six Flags Darien Lake Resort,
known as New York State's Coaster Capital. Tune in to find out how
YOU can sponsor a "friend" to Kingdom
Bound 2005.
Joel Snyder, Director, Described Media - National Captioning Institute.
National Captioning Institute is a nonprofit corporation whose primary
purposes are to deliver effective captioning services and encourage, develop
and fund the continuing development of captioning, subtitling and other media
access services for the benefit of people who require additional access to
auditory and visual information. As its resources permit and opportunities
unfold with the development of new technology, NCI will support services
to deaf, hard of hearing and other people who, for whatever reason, wherever
situated and irrespective of their economic conditions, are limited in their
ability to participate fully in the world of communications, heard, seen
or written. NCI, the global captioning leader, developed the closed captioning
service to provide 28 million people who are deaf or hard of hearing in the
United States with access to the wide range of information and entertainment
on television. Millions of other people can also benefit from watching captioning
television. These audiences include: people learning English as a second
language, young children learning to read, remedial readers, illiterate adults,
and people watching television in noisy environments such as restaurants,
bars and airports. You will learn about the array of services including prerecorded
captioning, videoconference conferences, real-time captioning and much more! Words
worth watching!www.ncicap.org.
The following files are in RealAudio. Click on the text image "listen" to hear the show, you can either right click and "save target as" or open it (realaudio plays instantly). If you cannot play the file then you may need to download realplayer. - Listen
July 10th's special
guests:
W. Roy Grizzard, Jr., Ed.D. Assistant Secretary for Disability
Employment Policy U. S. Dept. of Labor. W. Roy Grizzard was
nominated by President Bush to be the first Assistant Secretary for Disability
Employment Policy and was confirmed by the Senate on July 26, 2002. Dr.
Grizzard, who himself has retinitis pigmentosa, is responsible for advising
the Secretary of Labor on issues related to the employment of people
with disabilities. He works with all agencies within the U.S. Department
of Labor to provide leadership in the Department's efforts to increase
employment opportunities for adults and youth with disabilities. Prior
to joining the Department of Labor, Dr. Grizzard served for six years
as Commissioner for the Virginia Department for the Blind and Vision
Impaired. Prior to his appointment as Commissioner, Dr. Grizzard was
a teacher and administrator in Henrico County Schools. Dr. Grizzard serves
on the Board of Directors for Prevent Blindness of Virginia. He is a
former board member of the Council of State Administrators of Vocational
Rehabilitation, where he was Chairman of the Research Committee. Dr.
Grizzard earned his Doctor of Education degree from Nova Southeastern
University. He also has a Master of Science degree in Education Administration
and Supervision and a Bachelor of Science in Health and Physical Education
from Virginia Commonwealth University. Dr. Grizzard and his wife Nancy
have three sons and four grandchildren.As leader of the Office of Disability
Employment Policy, Dr. Grizzard shares his plans for the future. www.dol.gov/odep/programs/program.htm#programs
Listen
July 3rd's special guest:
Ollie Cantos, Special Assistant for Disability Rights, U. S. Dept. of
Justice. Cantos advises Acting Assistant Attorney General Bradley
J. Schlozman on the Department's activities under the Americans with
Disabilities Act, the Fair Housing Act, the Civil Rights of Institutionalized
Persons Act, and the Rehabilitation Act of 1973. Responsibilities include
fostering closer ties between the Department and disability rights leaders
at all levels, enhancing roll-out of Project Civic Access, expanding
the ADA Business Connection, increasing the number of state building
codes to become ADA certified,
and establishing and strengthening new cross-agency partnerships to enhance
national disability rights enforcement. Mr. Cantos was the first person
to serve as General Counsel and director of programs for the 90,000-member
American Association of People with Disabilities in Washington, D.C.
There, he forged key partnerships to remove both physical and prejudicial
barriers facing people with disabilities.
Ollie Cantos has been a leader in the disability rights
community for more than 15 years and blind since birth. Ollie Cantos
wrote a comprehensive toolkit assisting students and job seekers with
disabilities in identifying viable career options and has been profiled
in or written articles for national periodical including "The Braille
Monitor" and a 1991 book published by National Federation of the Blind.
He is a 1997 graduate of Loyola Law School and a 1992 graduate of Marymount
University, a three-time finisher the Los Angeles Marathon, and a science
fiction fan. His other hobbies include horseback riding, rollerblading,
and church/community involvement. www.usdoj.gov.
Listen
June 26th's special
guests: Nathasha Alvarez, Founder and Editor-In-Chief, Audacity Magazine.
Audacity Magazine is a news and entertainment magazine geared toward
the disability community in the United States and the world. As such Audacity
covers issues pertaining to life with a disability through the prism of disability
to expose the public at large to the attitudes of those with physical challenges.
In addition to covering issues related to disability, Audacity writes
stories pertaining to topical issues not directly related to disability per
se, those stories give writers and the disability community a chance to express
their opinions. Audacity Magazine's staff is made up entirely of
people with varying disabilities. www.audacitymagazine.com
"The Disabled Magazine for the Able
Mind."
Nancy Henderson Wurst, Author, Able! How One Company's Disabled
Workforce Became the Key to Extraordinary Success. Award-winning
author, Nancy Henderson Wurst tells the inspiring story of Habitat International
Inc., a global indoor-outdoor rug manufacturer where three of every four workers
have a physical or mental disability, or both. At Habitat, people with schizophrenia
drive forklifts next to those with Down syndrome, autism and cerebral palsy.
Hearing-impaired employees cut floor mats alongside co-workers who have endured
strokes, severe head injuries, or loss of an arm. For the past two decades,
the company's owner has been hiring people with disabilities, urging other
entrepreneurs to do the same thing, and defying the naysayers who said it
couldn't be done. The result: A multi-million-dollar corporation whose special-needs
workers out produce the nearest competitor 2-1. Able! chronicles
the joys and challenges of managing a business with disabled employees, shares
the heartwarming stories of workers who refused to be stereotyped, and offers
advice for employers who fear they'll lose money by hiring people with disabilities.
This book will change the way you think about business - and the people
around you! www.nancyhendersonwurst.com/books.html
- Listen
| June 19th's special guests: Bruce
Kopstein, Home of Guiding Hands. The 167 community home residents
at Home of Guiding Hands (HGH), a 37-year-old San Diego nonprofit agency,
all have special needs related to their developmental disabilities. While
they may face obstacles related to their neurological and sometimes physical
challenges, the fact is that many of these "special needs" people also
have special talents. A case in point is Bruce Kopstein. Kopstein, 40,
has many talents, but the one he is best known for can be traced back
to the age of three, when his mother introduced him to a child-size, pink
piano. "He's a wonderful piano player," says his mother, Barbara Bower
of San Diego. "When he was about three, I tried to teach him to play 'Twinkle,
Twinkle, Little Star' and he picked it up right away. Then he made up
his own little song and he played
it every day." Adept at playing by ear, Kopstein replicates songs he hears
(or has heard) on the radio, TV, or in movies. He can recall the notes
of an entire song, by mentally sorting through hundreds of melodies he
has stored in his mind over the years. "He has an incredible memory,"
Bower acknowledged. Tune in to hear Bruce play piano for you!!
www.guidinghands.org Meeche White, Executive Director - National ABILITY Center.The National Ability Center is committed to the development of lifetime skills for people of all ages and abilities by providing affordable outdoor sports and recreational experiences in a nurturing environment. The objective of these experiences is to build self-esteem, confidence and physical development, thereby enhancing active participation in all aspects of community life. As a national role model, the Center promotes the concept of ability through integration, public awareness and education. Our motto is "If I can do this, I can do anything." Tune in to learn more about upcoming programs, events and more! www.nac1985.org - Listen |
| April 3rd's special guests: Carol Kranowitz,
Author of best seller, The Out-Of-Sync Child. Carol is the Editor-in-Chief
of S.I. Focus, the international magazine focusing on sensory integration/sensory
processing.In addition to The Out-of-Sync Child: Recognizing and Coping
with Sensory Integration Dysfunction, Carol is the author of its sequel,
The Out-of-Sync Child Has Fun: Activities for Kids with Sensory Integration
Dysfunction (Perigee, 2003). Another one of her books is 101 Activities
for Kids in Tight Spaces (St. Martin's Press, 1995). She is the co-author
of Hear, See, Play! Music Discovery Activities for Preschoolers (Peg Hoenack's
MusicWorks, 1989) and of The Balzer-Martin Preschool Screening Program
Manual. She has also written many articles on sensory processing, child
development, and preschool curricula for magazines such as Parenting,
Sesame Street Magazine, Child Care Information Exchange, and Family Circle,
and for Internet websites, including www.child.com
and www.SPDnetwork.org.
Chris Alterio, owner ABC Therapeutics and Pediatric Chair, New York State Occupational Therapy Association. Is your child experiencing difficulty in their development or with school? Do you suspect that your child has a sensory integration or other learning disorder? We can help We have years of experience in all aspects of pediatric occupational therapy. We offer a full range of services, from evaluation and treatment to advocacy in working with your school district. (Also a sponsor of DisAbility News & Views radio show!). www.abctherapeutics.com - Listen |
| March 20th's special guest: Vickie
Rubin, Early Childhood Direction Center, a program to help parents
of children with special needs, birth to five at the Robert Warner Rehab
Center in Buffalo. Vickie will provide listeners valuable information
about the center and many services including funding and respite; child
development and disabilities; educational laws and regulations; parent
education workshops and all services are free! AND Jane Hersey, National Director of the Feingold Association will share timely information on how parents can help their kids avoid harmful synthetic food dyes found in Easter candies! - Listen |
| March 13th's special guests: Gwendolyn
Hubbard, Director, and Odessa Brown, Education Coordinator, CAO
Head Start, Classroom Program. Head Start has provided a high quality,
early childhood development program to pre-school children and their families,
since 1965. The program is funded under the Department of Health and Human
Services which mandates at least 10% of their enrollment include children
with disabilities. Erie County's numbers are closer to 20%. Disability
services include screenings, referrals, and coordination of related
services, co-programming and integrated settings. The Classroom Program
collaborates with Buffalo Hearing and Speech, Gateway-Longview and Kalieda
to provide the integrated settings. They accept applications all year
round for age eligible children. Dr. Mary Sweig Wilson, President of Laureate Learning Systems, Inc. Dr. Wilson graduated from Northwestern University with a Ph.D. in Communicative Disorders and is a practicing clinician in Speech Language Pathology. Laureate's team of professionals is led by the company's founders, Dr. Mary Sweig Wilson and Mr. Bernard (Bernie) Fox. Since its inception in 1982, Laureate has been dedicated to publishing innovative software of the highest quality, specifically designed to improve the lives of children and adults with special needs. Laureate's multimedia programs combine superior instructional design with digital speech, engaging graphics, and amusing animation. They are noted for their integrity and effectiveness in clinical settings. Over the years, Laureate has received national recognition and many awards, including those from the Council for Exceptional Children, Johns Hopkins National Search, and the Software Publishers Association. Laureate Learning is also a proud sponsor of DisAbility News & Views Radio Show!! - Listen |
| February 27th's special guests:
Stephanie Bryn, U.S. Dept. of Health Resources and Services Administration
and Teen Expert's Matthew Cavedon and Lindsey Good -
STOP BULLYING NOW Campaign FACT: Children who are
bullied are more likely to be depressed, lonely, anxious, have low
self-esteem, feel unwell and absent from school frequently, think about
suicide and commit suicide. |
February 20th's special guests: Ronna Glickman, Paul
Lawrence and Andrew Cuddy, Esq. Does your child take a bus to and
from school each day? Notice any sudden changes in your child's behavior after
riding the bus? Do you know if your child is being treated with care, respect
and dignity by the adults on the bus? What type of training do the bus driver
and aide receive? How many hours? Are they observed annually by a supervisor?
How do you know?
Ronna Glickman took action when she suspected her gentle and loving son Andy,
who has autism, was being mistreated by the bus driver and aide on his bus
ride. She had the determination and courage to find out the truth of why her
son suddenly began to have behavioral issues in school(an Investigative report
recently aired on WGRZ-TV, NBC affiliate in Buffalo, NY). Ronna will be sharing
plans for new legislation mandating school buses have video cameras installed
and how parents can help! Joining her in studio will be Paul Lawrence, Private
Investigator and Andrew Cuddy, an attorney who specializes in Special Education
law.
Paul Lawrence is President and CEO of Empire Investigative Group, Inc. Mr.
Lawrence has been conducting investigations for over 10 years, covering a
wide array of cases, including two involving abuse on school buses. Mr. Lawrence
will reveal more details of this alarming story and provide important tips
for parents.
Andrew Cuddy, is an Attorney whose practice is exclusively devoted to representing
individuals with disabilities and their families. This past year Mr. Cuddy
initiated hearings in 22 different counties throughout New York State pursuing
special education claims for parents.
We need people to stand up for our children now... They need our voices to
make a difference! If you won't, who will?
February 13th's special guests: Sean Stephenson - Speaker,
Educator , Author and Neuro-Linguistic Hypno-Therapist. Tune in to hear how
Sean Stephenson has overcome extreme physical obstacles. Sean was born with
a rare bone condition, Osteogenesis Imperfecta. In spite of experiencing over
200 bone fractures, Sean has accomplished more than many individuals twice
his age with half of his challenges. As a professional speaker, Sean entertains
and inspires his audiences. He has also appeared on Oprah, CNN and C-SPAN.
A graduate of DePaul University, Sean has worked in the White House and testified
before the United States Senate.
Dr.Cass Ingram, Author of Natural Cures for Killer Germs
will discuss MAD Cow also known as BSE, or Bovine Spongiform Encephalopathy,
indicating holes as in a sponge in the tissue of the brain and spinal cord.
In human cases it is called variant Creutzfeldt-Jacob disease, or vCJD. Dr.
Ingram details extensively vCJD and its symptoms, gives risk analysis tests
and discusses the only possible hope of treating someone with this debilitating
disease. "Cow contamination is already widespread amongst cattle and humans.
With symptoms so similar to Alzheimer's and Parkinson's, often Mad Cow is
improperly diagnosed in humans," explains Dr. Ingram. Show Coming Soon!
February 6th's special guest: Beverly Swartz, Executive Director,
All Purpose Canines, Inc. With innovative program curriculum, it is our vision
to "Make a Difference" by enhancing the lives of children with Autism and
other Pervasive Developmental Disorders as well as those individuals diagnosed
with Diabetes, Asthma, Epilepsy and other seizure disorders. Dogs partnered
with those individuals who have been diagnosed with Autism or PDD will assist
with social interaction, safety issues & communication. The trained service
dog assists his partner with daily living tasks while constantly giving companionship
and unconditional love. "The training and placement of dogs is our passion
not our business." - listen
January 30th's special guest: Gary Karp, Computer Ergonomics
Consultant, Musician, Juggler. and Author of several books including Life
On Wheels; For the Active Wheelchair User. Paralyzed with a spinal cord injury
for 26 years, since he fell out of a tree and broke his back at 18, unable
to move his legs the moment after he hit the ground from 25 feet up. Being
a chair user has been very a different experience from what he imagined it
to be at the time. Gary's main interest is to correct the widespread misunderstanding
of disability. This is what Life On Wheels is about - to address the misconceptions
people bring to their experience of disability. Gary believes these myths
drags out the process of adaptation, wasting time having to get over culturally-ingrained
beliefs which are not true. There is enough to adjust to with a disability,
so the more one is able to realize how much potential for meaning remains
in their lives - even with a "significant" disability - the sooner that optimal
life can be reached. Plenty, in fact, most people with disabilities have already
proven the case! - listen
January 23rd's special guest: Joyce Steel, Program Coordinator,
New York State Partners in Policymaking through The Advocacy Center. NYS Partners
In Policy Making is a statewide training project that will offer information
and skill building for 50 participating individuals to enable them to become
effective advocates for systemic change. Dynamic sessions include nationally
recognized speakers. Hotel accommodations and meals will be provided. To qualify
for this program, individuals must have a developmental disability, be a family
member, or be a caregiver. Selected participants must commit to attend monthly
training sessions in Syracuse. Partners in Policymaking is made possible by
a grant from the NYS Developmental Disabilities Planning Council."To
apply online, click here" - listen
January 16th's special guest: David Beaver, Editor, PALAESTRA,
Established in 1984; PALAESTRA is a quarterly publication and premier resource
on adapted physical activity. The mission of the publication is to enlighten
parents in all aspects of physical activity, to increase the knowledge base
of professionals working with children and adults with disabilities and to
show the value physical activity holds for increased wellness. - listen
January 9th's special guest: Glenn McIntyre, motivational
speaker, trainer and consultant, Co-founder of McIntyre & Associates; As a
young police officer, Glenn McIntyre's life was forever altered when he was
hit by an impaired driver, leaving him a paraplegic by breaking his back in
17 places. Through eight months of hospitalization and intolerable pain, Glenn
had to learn to endure, overcome and then excel at life again. And he did!
Not only did Glenn return to law enforcement for another 14 years, he also
became a much sought after professional speaker, an instructor at California
State University Northridge and a top-ten nationally ranked wheelchair tennis
competitor. Perhaps more importantly, Glenn developed the skills for success
that he has been sharing with audiences since 1989. Glenn is featured in several
"Chicken Soup for the Soul" books, has been on the cover of "Success Magazine",
as a lead article in "Human Resources Executive", and on every major TV network-
ABC, NBC, CBS and FOX. Glenn has also received numerous commendations as a
law enforcement officer. By overcoming challenges and through his commitment
to inspiring and educating others, Glenn is living proof that ALWAYS THERE
IS AWAY! - listen
January 2nd's special guest: Daniel S. Hanson, father, teacher,
leader and author of Room for J, shares a painfully honest account of his
family's struggle to love and help their son who denies his mental illness.
Room for J is heart wrenching, eye-opening, and informative book about schizophrenia.
This book provides invaluable guidance and hope for the many millions of people
who must learn how to honor their loved one's experience while equally caring
for themselves. - listen
December 26th's topic: For Kid's Only! Alex Moshenko will
be co-hosting the radio show and taking calls from all children, and youth
with special needs who want to share their thoughts (poetry and music) as
well as their hopes and dreams on the program!! Make sure you mark your calendar
for this show and tell your children!- listen
December 19th's special guest: Jeff Hirschfelt - The National
Statler Center for Careers in Hospitality Service; A unique and exciting concept
in hospitality-employment training that provides physically disabled individuals
or those who are blind or visually impaired with the right tools for successful
careers in a rapidly growing industry, including Hotel operations, Travel
and tourism and Sales and marketing.
Also special guest: F. Alexander Brejcha - talented Writer
and Author. Learn how Alex's "revised" outlook on life has helped
him develop a freelance career-on-the-side as a writer of commercial science
fiction and non-fiction and a useful perspective for peer counseling, and
volunteer work assisting various disability organizations.- listen
December 12th's special guest: Jane Hersey- Feingold Program Did
you know that the brand of ice cream, cookie, and potato chip you select could
have a direct effect on the behavior, health, and ability to learn for you
or your children? Numerous studies show that certain synthetic food additives
can have serious learning, behavior, and/or health effects for sensitive people.
It is basically the way people used to eat before "hyperactivity" became a
household word, and before asthma and chronic ear infections became so very
common. Used originally as a diet for allergies, improvement in behavior and
attention was first noticed as a "side effect." The Feingold Program is a
test to determine if certain foods or food additives are triggering undesirable
symptoms. The Feingold Program is making a profound difference in children,
and families!- listen
December 5th's special guest: S'Wayne, gifted Gospel Hip-Hop
Rapper will sing, rap and share his amazing background with listeners. S'Wayne
has received numerous awards for his music over the last ten years and founded
a ministry for the Urban/Hip-Hop culture. He has been the first person to
record three projects with a tracheostomy tube and continues to touch many
hearts! Tune in this Sunday 5-6 PM on WXRL 1300 AM to be entertained and lifted
up!- listen
November 28th's special guest: Stanley D. Klein, Ph.D., clinical
psychologist, author and Director, DisABILITIESBOOKS, Inc. Dr. Klein a frequent
speaker on disability topics from Gloucester, Massachusetts has worked with
children with disabilities and their parents for 50 years. A recipient of
numerous national awards for his work, Dr. Klein was co-founder and former
editor-in-chief of Exceptional Parent magazine. He is co-editor with Gary
Karp, From There To Here: Stories of Adjustment to Spinal Cord Injury (No
Limits Communications, 2004) and co-editor with John D. Kemp, Reflections
from a Different Journey: What Adults with Disabilities Wish All Parents Knew
(McGraw-Hill, 2004) . Tune in this Sunday as Dr. Klein shares these excellent
resources which provide personal stories of how "everyday" people have dealt
with adversity and celebrate the richness of life! Truly an inspirational
show!! www.disabilitiesbooks.com/index.html-
listen
November 21st special guests: Jeff Elliott- author of "Rebounding
from Deaths Door". Hear an incredible true story as father and son journey
through the impossible! Overcome with emotion after watching his son play
in his first collegiate basketball game, Jeff was inspired to tell the story
of how his son Eric overcame a massive brain tumor, double vision, and zero
balance to receive a basketball scholarship and earn a starting position on
his college team. Through telling his son's story, it is Jeff's desire to
give hope to those who are lost, inspiration to those who despair, and vision
to those who cannot see past the obstacles that life has placed in their path.
www.reboundingfromdeathsdoor.com
Max Donatelli, Executive Director, Parent Network of WNY.
The parent-led organization provides services for the families of individuals
with disabilities throughout the Western New York area. Learn more about the
services and support which Parent Network provide to parent and caregivers
to achieve the skills necessary to best advocate for children and to become
full partners in his/her educational process. Parents play a critical role
in helping their child with special needs achieve success in their lives.
www.parentnetworkwny.org/document_1.html
- listen
November 14th's topic - Ask the Advocate! PARENTS it is your
TIME to call in the station with questions and concerns about special education,
IEP's, evaluations, and for resources! You can email your questions to monica@poweradvocates.org
OR call the radio show at 716-681-1313 Sunday from 5-6 PM.
Special guest Roy Abell, CEO of PIE* Medical International,
Inc., a company that has developed and manufactures the world's first bowel
prosthetic device that changes the lives of people with disabilities.Please
take time and go their website www.piemed.com
and discover what they are achieving!- listen
November 7th's special guest: Hunter's Hope Foundation- Jill
Kelly, CEO and Jacque Waggoner, Chair of the Board will share important news,
upcoming events and updates about Hunters Hope Foundation. Established in
1997 by Pro Football Hall of Fame member and former Buffalo Bills Quarterback,
Jim Kelly, and his wife, Jill, after their infant son, Hunter, was diagnosed
with Krabbe Leukodystrophy, an inherited, fatal, nervous system disease. The
Foundation is the Kelly's life long commitment to increase public awareness
of leukodystrophies as well as to increase the likelihood of early detection
and treatment. Their ultimate goal is to raise money to fund research efforts
to identify new treatments, therapies, and a cure for Krabbe and other leukodystrophies.
Tune in Sunday at 5PM to hear about Hunters Hope Foundation AND more! www.huntershope.org-
listen
October 31st's special guest: Jim Steinke- HOPE, Inc. HOPE,
Inc. began in 1992 to provide a lending program of equipment for families
that have disabled children to try equipment for a few weeks before they decide
to purchase to see if the equipment will work. Hope's program is especially
designed to work with children to age 12. Our goal is to have this lending
program in every state with a possibility of four regional centers. HopeIncOnline.org
(opens in new window).- listen
October 24th's topic: High Hurdles Therapeutic Riding offers
cognitively, emotionally and physically challenged individuals a unique opportunity
for growth and development. Instructor, student, horse and volunteers work
together to meet challenging yet attainable horsemanship goals. Learning to
care for and about horses while mastering riding skills is what High Hurdles
is all about. www.sasinc.org/body_high_hurdles.html-
listen
October 17th's special guest: Pat DePrima-owner of Mind-Body-Spirit
Connection. Will discuss natural living, holistic health, healing, and various
therapies/products that may benefit people with dis-abilities. - listen
October 10th's special guest: Gary Mayerson, attorney who
has dedicated his practice to helping families across the nation get an appropriate
"special" education for their child with a disability, and author
of "How to Compromise with Your School District without Compromising
Your Child" a guide that every parent needs. Helping parents navigate
the confusing and complex world of educational bureaucracies for children
with special needs, this field guide expertly takes you through how to advocate
for your child's education. Gary is a member of the New York, New Jersey and
Florida Bars, and has been specially admitted to practice in many jurisdictions,
both at the State and Federal levels. He will be discussing his new book and
answering questions from listeners! www.mayerslaw.com-
listen
October 3rd's topic: Autism Awareness- guests include co-chairs
from the Buffalo Niagara Walk FAR for NAAR; Mother and teenage son discuss
Autism, along with others! www.naar.org/walk/walkfiles/1061/walk.asp,
Dr. Tony Attwood:
tonyattwood.com.au- listen
September 26th's special guest: Dr. Martin Hoffman, Developmental
Pediatrician, Associate Professor of Clinical Pediatrics University Pediatric
Associates, UB's Center for Learning and School Success, Diefendorf Hall,
Buffalo, NY. Will be sharing information about developmental disabilities,
evaluations and advocacy. www.chob.edu/Clinical_Services/center_learning.html-
listen
September 19th's special guest: Greg Smith, The Strength
Coach - Born with muscular dystrophy, the son of a high school football coach,
Greg Smith has spent a lifetime over-coming challenges and applying the lessons
of sports to daily life. A former sportscaster and founder of "On A Roll,"
a syndicated radio show on disabilities, Greg now speaks and broad-casts as
"The Strength Coach." www.thestrengthcoach.com-
listen
September 12th: The Joy Ministry of Graceview Baptist Church, Tomball,
TEXAS -If you are a church that is interested in opening your doors to people
with disabilities, or expanding the class for people with special needs that
you may currently have, let me encourage you to listen to the radio show.
We are here to share our experiences with you and to lift you up. The Joy
Conference will be on Sept. 24-25 for ALL churches who want to open their
doors to people with disabilities. www.graceview.org/joy.htm-
listen
September 5th's special guest: Mary Consiglio, a local woman
with Multiple Sclerosis (MS) shares her personal story, including the challenges
and the victories she has exper-ienced using various natural treatments and
therapies. www.myhealthstore.com-
listen
August 29th's special guest: Richard J. Gehring,
President - Meals on Wheels of Buffalo & Erie County. The mission of Meals
on Wheels of Buffalo & Erie County, Inc., is to deliver daily nutritious
meals and provide related support services to those members of our com-munity
who have limited ability to shop and/or prepare meals for themselves. The
purpose of our mission is to enable our participants to maintain the highest
level of independence. www.mowbuffalo.com-
listen
August 22nd's special guest included: Sophia Roberts, Regional
Organizer of Self Advocates Association and BJ Stasio and Jason Smith will
also be speaking on behalf of self advocacy The Self-Advocacy Association
is a strong voice for and by people with disabilities, promoting independence,
empowerment, leading by example, communicating, networking and encouraging
each other. www.sanys.org-
listen
August 15th's special guest: Al Condeluci, PhD, has been
an advocate and catalyst for building community in Western PA. He has worked
as an attendant, caseworker, advocate, planner, program director and now,
CEO of his organization, UCP (United Cerebral Palsy) of Pittsburgh. Dr. Condeluci
has emerged as a national leader and consultant on human services and community
issues. He speaks annually to national and international audiences. His books,
which include Interdependence (1991, 1995), Beyond Difference (1996), The
Essence of Independence (1999) and Cultural Shifting, have won praises and
awards for their thoughtful approach to culture and community and are now
used at many trainings and educational seminars. http://www.ucp.org/-
listen
August 8th's special guest: Anna Sorrento,Certified Reflexologist
for many years. Reflexology is based on the principle that there are zones
and reflex areas in the feet, hands and ears that correspond to all body parts.
Since reflexology treats the whole person, not the symptoms of disease, most
people benefit from treatment. The therapy brings relief to a wide range of
acute and chronic conditions, and is suitable for all ages.- listen
August 1st special guest: Denny Chipollini, Founder and Spokesperson
of Generation Hope.Denny will share how disabilities and physical challenges
are gifts not liabilities. How someone with these gifts are to teach and educate
others. How important people with challenges are to the "normal people",
because,when accomplishing things that are not expected of them, raises the
bar for all people. Living life with " No Excuses, No Limits".Website
is located at www.genhopeusa.org
- listen
July 25th's special guest: Robert (Rob) Davies is the CEO
of Disability Access 4 Me, LLC an internet based information exchange and
matching service for persons in the aging and disability communities. The
website is located at www.access4me.org.
Mr. Davies is a national expert on housing and future care planning for persons
with disabilities and their families. He is a speaker at regional,state, national
and international conferences on housing, access for services, and future
care planning. He was the Director of Housing Initiatives for the New York
State Office of Mental Retardation and Developmental Disabilities for the
past 13 years and has worked in the field for 32 years. www.access4me.org-
listen
July 18th's special guest: Dr. Doris Rapp - a board-certified
environmental medical specialist and pediatric allergist.Dr. Rapp is the founder
of the Practical Allergy Foundation in Buffalo and is a past President of
the American Academy of Environmental Medicine. Her newest book, "Our
Toxic World - A Wake Up Call" is on chemicals and how they are hurting
our children, all wildlife, our planet and "Is This Your Child's World?",
a book to help identify substances which cause illness and behavioral changes
in children and adults, and for providing treatment ideas. www.drrapp.com-
listen
July 11th's special guest included: Dr. Rosemarie Rossetti,
Ms. Wheelchair Ohio 2004. Tune in for an inspirational interview! Rosemarie
will discuss how to live your life with conviction. Author of "Take Back
Your Life!" www.rosemariespeaks.com-
listen
July 4th's topic: “Let Freedom Ring!” Open calls
accepted from anyone who wants to talk about disability-related issues.- listen
June 27th's special guest included: Joseph M. Valenzano,
Jr., President/CEO and Publisher of Exceptional Parent magazine, a 34-year-old
communications company that focuses on providing information and support to
the special needs audience, primarily caregivers, professionals, parents and
physicians. www.eparent.com-
listen
June 20th's special guests included: Veronica Federiconi,
Autistic Services and the National Director of “ Hope and Homes for
Children ” from Romania. autisticservices.org-
listen
June 13th's special guests included: This week's topic "Special
Education" with guest Dee Alpert, Publisher The specialeducationmuckraker.com
website.- listen
Note: If you can NOT
hear the show "live" then you may contact your local talk radio
stations and ask for the show to be syndicated!
Sponsors:
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•Autistic
Services(opens in new window)- Williamsville, New York (716)631-5777
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in new window)- Williamsville, New York 1-888-7PEOPLE
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Systems of America (opens in new window)- Snohomish, WA (360)668-5700
•Tom Fontana Emmy Award Winning Writer and
Executive Producer on TV
For information on Sponsorship Opportunities call: (727) 858-4517
To make on air comments call DisAbility News & Views Radio
Contact Us:
Power Advocates • • Tampa, Florida
•(727) 858-4517 • monica@disabilitynewsradio.com